Lscott71
Active member
- Joined
- Aug 22, 2017
- Messages
- 57
- Reason
- CALS
- Diagnosis
- 05/2017
- Country
- US
- State
- Texas
- City
- Fort Worth
Hello, my PALS was diagnosed in May and today had his 2nd ALS clinic visit at Texas Neurology. I’m just not understanding the respiratory numbers.
His first visit in July the respiratory therapist said his MIP was -30 and MEP was 93. Today she said he was at -11 for MIP and 48 for MEP. No one really explained this, and when I asked the doctor about it he didn’t seem very worried. They did seem kind of shocked that his readings on the pulse/ox I’ve been checking here and there will run in the low 70’s. He does use the biPAP all night and since I noticed the low oxygen levels I’ve been making him use it several times a day also.
He breathes pretty fast and shallow and gets winded just brushing his teeth.
They said he needs a cough assist and a suction machine, but we have to get it through the VA and they canceled our appointment we had with them two weeks ago (someone he was seeing there got the flu). Of course, it’s like pulling teeth trying to get rescheduled!
Sorry this is so long! Thank you in advance for any information!
Luanne
His first visit in July the respiratory therapist said his MIP was -30 and MEP was 93. Today she said he was at -11 for MIP and 48 for MEP. No one really explained this, and when I asked the doctor about it he didn’t seem very worried. They did seem kind of shocked that his readings on the pulse/ox I’ve been checking here and there will run in the low 70’s. He does use the biPAP all night and since I noticed the low oxygen levels I’ve been making him use it several times a day also.
He breathes pretty fast and shallow and gets winded just brushing his teeth.
They said he needs a cough assist and a suction machine, but we have to get it through the VA and they canceled our appointment we had with them two weeks ago (someone he was seeing there got the flu). Of course, it’s like pulling teeth trying to get rescheduled!
Sorry this is so long! Thank you in advance for any information!
Luanne