Tlo57
Active member
- Joined
- Sep 16, 2017
- Messages
- 46
- Reason
- Lost a loved one
- Diagnosis
- 09/2017
- Country
- US
- State
- FL
- City
- Winter haven
Hope I'm posting in appropriate forum. As previously posted, my twin brother was diagnosed w/ >90% certainty at Duke w/ ALS. He's had drop foot, weakness, leg, abdominal, throat, neck cramps and significant atrophy.
He had a full MRI ordered by another specialist on the 9/18. Follow up on 10/3 for results.
I detected during our conversation that his words were slightly slurred which he attributed to fatigue.
I asked if he was familiar w/ ALS symptoms, progression, treatment etc. & his response was "NO and I don't want to know."
I didn't want to scare him, so I just said that we need stay informed so we can prepare for what lies ahead.
I forwarded VA/ALS information for compensation that Mr. Atsugi had prepared and posted in the military forum for him to review.
He thanked me for everything and said he loved me. I think he prefers that I handle everything because he's not quite ready to face this just yet.
I guess I'll just keep quiet and wait for him to talk to me about everything when he's ready. I don't know what else I can do.
I'm editing because after submitting this post, I thought how stupid, of course he's familiar w/ symptoms because he's experiencing them. I wanted to know if he's aware of what to expect and what the final outcome will inevitably be.
He had a full MRI ordered by another specialist on the 9/18. Follow up on 10/3 for results.
I detected during our conversation that his words were slightly slurred which he attributed to fatigue.
I asked if he was familiar w/ ALS symptoms, progression, treatment etc. & his response was "NO and I don't want to know."
I didn't want to scare him, so I just said that we need stay informed so we can prepare for what lies ahead.
I forwarded VA/ALS information for compensation that Mr. Atsugi had prepared and posted in the military forum for him to review.
He thanked me for everything and said he loved me. I think he prefers that I handle everything because he's not quite ready to face this just yet.
I guess I'll just keep quiet and wait for him to talk to me about everything when he's ready. I don't know what else I can do.
I'm editing because after submitting this post, I thought how stupid, of course he's familiar w/ symptoms because he's experiencing them. I wanted to know if he's aware of what to expect and what the final outcome will inevitably be.
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