Old 09-12-2017, 10:05 PM #1 (permalink)
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Default Anyone started on Radivica yet? Use this thread to discuss access/ insurance

Trying to get an idea of when we can expect to start- we have prescription and are in contact with their customer support but I was wondering if anyone here has first hand experience with it now that it's approved and available.
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Old 09-12-2017, 10:22 PM #2 (permalink)
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Default re: Anyone started on Radivica yet? Use this thread to discuss access/ insurance

I'm aware of one gent on Facebook who has started.

He's not impressed so far...
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Old 09-13-2017, 06:04 AM #3 (permalink)
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Default re: Anyone started on Radivica yet? Use this thread to discuss access/ insurance

I am not planning to take it but I asked the nurse at clinic last week how it was going. The clinic staff have been working hard to try to get approvals. She said no one had received it through insurance yet there. She also said IVIG which is also infusion and has been around for a long time ( so it has established insurance protocols) usually takes 4-5 weeks for approval. Since radicava is new it might be longer. I have heard on other sites frustration with searchlight but ultimately it is up to the insurance company and some were more prepared with policies for this than others. Good luck
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Old 09-13-2017, 06:12 AM #4 (permalink)
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Default re: Anyone started on Radivica yet? Use this thread to discuss access/ insurance

On Friday my neuro told me insurance just requested a letter from her for the pre-authorization. We started insurance paperwork weeks ago. It's slow going but slowly moving forward.
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Old 09-13-2017, 02:38 PM #5 (permalink)
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Default re: Anyone started on Radivica yet? Use this thread to discuss access/ insurance

I've been approved for it by my ALS clinic. Now begins the dealing with my insurance to see if/how much they might be willing to cover.
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Old 09-13-2017, 04:39 PM #6 (permalink)
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Default re: Anyone started on Radivica yet? Use this thread to discuss access/ insurance

My insurance approved me and I was supposed to start this week. They are finding a nurse to do home based infusions. I am supposed to make sure I can tolerate the drug before they put a PICC line on.
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Old 09-13-2017, 04:51 PM #7 (permalink)
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Default re: Anyone started on Radivica yet? Use this thread to discuss access/ insurance

Option Care recently got the home infusion contract. You can find their locations on line.
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Old 09-13-2017, 06:02 PM #8 (permalink)
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Default re: Anyone started on Radivica yet? Use this thread to discuss access/ insurance

They set me up with Soleo Health.
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Old 09-13-2017, 06:23 PM #9 (permalink)
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Default Re: Anyone started on Radivica yet? Use this thread to discuss access/ insurance

Since we have 2 threads going on this important subject use this one to discuss insurance / access issues.

Use the other found here Have you started Radicava? Use this thread to discuss experiences with receiving radi
To discuss experiences with the drug and the infusion process

Thanks!
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