paddycake1998
New member
- Joined
- Aug 30, 2017
- Messages
- 1
- Reason
- Friend was DX
- Diagnosis
- 04/2016
- Country
- US
- State
- az
- City
- phoenix
Hello....A close friend has been diagnosed with bulbar ALS 4/2016. She has a wonderful husband, 2 parents close by, & 3 young adult children. One still in HS with my children.
She & her family have kept her diagnosis private. She spoke to me about it July 2016. I have been honoring her privacy despite her very obvious absence from our community. Sadly I have not seen her since May, but occasionally get a reply text which thrills me as I realize the energy it must take. I miss her very much.
Her Mother reached out yesterday & told me that she will not talk about a feeding tube, is very angry, drags both legs to walk, and cannot be understood verbally. This has just got me torn up inside.
I worry she is lonely, home all day alone.
Any advice for me would be appreciated. I'd like to open up and reach out to her 16 year old daughter and offer my support. Just don;t know how to....
She & her family have kept her diagnosis private. She spoke to me about it July 2016. I have been honoring her privacy despite her very obvious absence from our community. Sadly I have not seen her since May, but occasionally get a reply text which thrills me as I realize the energy it must take. I miss her very much.
Her Mother reached out yesterday & told me that she will not talk about a feeding tube, is very angry, drags both legs to walk, and cannot be understood verbally. This has just got me torn up inside.
I worry she is lonely, home all day alone.
Any advice for me would be appreciated. I'd like to open up and reach out to her 16 year old daughter and offer my support. Just don;t know how to....