Old 06-16-2017, 07:56 AM #1 (permalink)
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Default Riluzole and Nausea?

My wife, PALS, has been taking Riluzole for about a month. Two weeks into it the nausea started. She has a few crackers just prior to the pill and that helped for a while but now the nausea is 24/7. ANy suggestions?

For those who have stuck with the Riluzole, how long did the nausea last?

John
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Old 06-16-2017, 08:10 AM #2 (permalink)
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Default Re: Riluzole and Nausea?

Is she having liver tests? If I remember correctly when starting it is tests every month for the first 3 months then every three months for a year then annually. I am concerned that the nausea came after a couple of weeks and is getting worse. Please get a test today if she has not just had them. Please call your neuro. Very important. Don't wait.

My experience ( which was mild) was nausea for the first couple of weeks then went away. Btw fat interferes with riluzole so a fat free food with it would be preferable if this turns out to be some other issue and she stays on it
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Old 06-16-2017, 08:39 AM #3 (permalink)
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Default Re: Riluzole and Nausea?

Forum members agree that each person is different. Riluzole, in my case, produced no side effects whatsoever. Nausea 24/7 does seem unusual.
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Old 06-16-2017, 09:06 AM #4 (permalink)
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Default Re: Riluzole and Nausea?

I took it for about three weeks, then nausea started to the point where I quit taking it. It took three days after stopping before I started feeling OK again.
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Old 06-16-2017, 12:21 PM #5 (permalink)
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Default Re: Riluzole and Nausea?

My brother took it for about 3 weeks and was in bed for the last week of it. Didn't eat for about 4 days. He went off it and felt better right away. It just didn't work for him.
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Old 06-16-2017, 12:38 PM #6 (permalink)
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Default Re: Riluzole and Nausea?

I took it for a month and could not tolerate it. Nauseous and tired.
When I stopped, it took several days before I felt better.
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Old 06-16-2017, 01:43 PM #7 (permalink)
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Default Re: Riluzole and Nausea?

I only take it once a day, before bed because of the nausea.
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