madducky9
New member
- Joined
- Jun 5, 2017
- Messages
- 4
- Reason
- Loved one DX
- Country
- US
- State
- OR
- City
- MILWAUKIE
My mother has ALS. Has been diagnosed for about a year now, although she was diagnosed late because she had fallen and injured herself and was waiting for almost a year a hip transplant. Looking back she has had ALS for several years as she was falling often and was unable to climb two flights of stairs 2 years ago,
Anyway, I am her only child. I am the only family within 500 miles. I often have to take time off work to drive her to medical appointments, to meet with speech or occupational therapists. She can barely speak now and I am the only person who can understand her and need to mediate everything.
My work has been mostly accommodating except for my store manager, I recently asked for an afternoon off, as it was my daughters 5th birthday and I wanted to take her and my mom out for lunch, I am weary that it my be my daughters last birthday spent with grandma, Anyway, I reminded the manger that I was leaving and asked him to take over my responsibilities for the afternoon. He refused and told me to leave and have fun with my "dead mother." I couldn't believe it. Everything in me wanting to knock him out, but I had more important things to tend to and left. But I am still in shock. I am not asking for the world to feel sorry for me, or even support me, but is it too much to ask for a little sympathy?
Anyway, I am her only child. I am the only family within 500 miles. I often have to take time off work to drive her to medical appointments, to meet with speech or occupational therapists. She can barely speak now and I am the only person who can understand her and need to mediate everything.
My work has been mostly accommodating except for my store manager, I recently asked for an afternoon off, as it was my daughters 5th birthday and I wanted to take her and my mom out for lunch, I am weary that it my be my daughters last birthday spent with grandma, Anyway, I reminded the manger that I was leaving and asked him to take over my responsibilities for the afternoon. He refused and told me to leave and have fun with my "dead mother." I couldn't believe it. Everything in me wanting to knock him out, but I had more important things to tend to and left. But I am still in shock. I am not asking for the world to feel sorry for me, or even support me, but is it too much to ask for a little sympathy?