azgirl
Senior member
- Joined
- Jan 20, 2014
- Messages
- 961
- Reason
- PALS
- Diagnosis
- 12/2013
- Country
- US
- State
- AZ
- City
- Tucson
I am tired. My FVC is about 30. I have no regrets about waiting so long to get feeding tube. My family is drained physically, emotionally, and financially, although none of them complain. I still feel enormous guilt.
Part of me wants to forgo the procedure, enter hospice ' and be done with this nightmare.
My concern is that they will have to entubate and I will be on able to breathe again on my own, leading to trach decision. I have dnr in place that says no trach , but would hate to wake up and half to make that decision.
This is a tough decision and wanted the opinions of those who understand so well what I am talking about. surgery scheduled next week
Part of me wants to forgo the procedure, enter hospice ' and be done with this nightmare.
My concern is that they will have to entubate and I will be on able to breathe again on my own, leading to trach decision. I have dnr in place that says no trach , but would hate to wake up and half to make that decision.
This is a tough decision and wanted the opinions of those who understand so well what I am talking about. surgery scheduled next week