cillenorman
New member
- Joined
- Apr 12, 2017
- Messages
- 1
- Reason
- PALS
- Diagnosis
- 06/2016
- Country
- US
- State
- MS
- City
- Newton
I have been diagnosed since August of last year. Currently my arms are totally impaired. I can still use my fingers. EMG shows active deterioration in my neck, upper back, upper chest. I am having bowel slowdown. My legs, breathing, and speech are fine for now. I read on various forums about PALS still working, exercising, swimming, etc. This makes me feel like something is really wrong with me. I am exhausted 24/7. Getting dressed by my caregiver, tending to toiletries, taking a short walk, and being fed breakfast as Nd lunch necessitate a nap or couple of hours of bed rest. Does anyone else stay this exhausted or am I doing something wrong?