memyers
New member
- Joined
- Mar 23, 2017
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 02/2017
- Country
- US
- State
- GA
- City
- Atlanta
My mom was recently diagnosed with ALS (1st opinion at Mayo and 2nd at Emory). She has bulbar onset and her limbs are still quite strong. Her pulmonary tests show severe weakness (<50%) and her ability to swallow is quite poor. She is having a feeding tube inserted next week at Mayo. She wants to do more things while she still can but she feels terrible most days. She is experiencing an "internal" trembling and sometimes burning sensation that is often throughout her whole body. It seems to be some combination of anxiety and ALS-related symptoms but we can't seem to get it under control. Does anyone have any suggestions for possible treatment options - physical therapy, drugs, psychiatrist, etc.?