Old 03-18-2017, 12:29 PM #1 (permalink)
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 181
Kristina1 is on a very distinguished road
Kristina1 Kristina1 is online now
Member
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 181
Kristina1 is on a very distinguished road
Default is coordination affected? or is it an issue of stiffness

Is ALS affecting my coordination or is it just seeming that way due to stiff muscles?

On affected left hand the fingers are pretty stiff. I have incidents where I meant to scratch my eyebrow but poke myself in the eye by accident instead. Or today I meant to use my thumb to keep food from leaking out my lips and instead I somehow bit my thumb.

Is this just due to stiff fingers not being as agile?

Last edited by Kristina1 : 03-18-2017 at 01:25 PM
Kristina1 is online now  
Old 03-18-2017, 01:15 PM #2 (permalink)
Firefighter58's Avatar
Member
 
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 364
Firefighter58 is a jewel in the roughFirefighter58 is a jewel in the roughFirefighter58 is a jewel in the roughFirefighter58 is a jewel in the rough
Firefighter58 Firefighter58 is offline
Member
Firefighter58's Avatar
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 364
Firefighter58 is a jewel in the roughFirefighter58 is a jewel in the roughFirefighter58 is a jewel in the roughFirefighter58 is a jewel in the rough
Default Re: is coordination affected? or is it an issue of stiffness

I am not sure Kristina, but I have done the same. Not sure of the cause.
Al
Firefighter58 is offline  
Thanks from
Kristina1 (03-18-2017)
Old 03-18-2017, 04:15 PM #3 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,375
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is offline
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,375
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: is coordination affected? or is it an issue of stiffness

It sounds like muscle spasticity.

The signals are not getting through correctly so the muscles are kind of 'hearing' all this static with the signal you want, and it's like the timing goes off.

Let's think about a simple action - if you want to bend your elbow then your bicep has to contract and your triceps has to lengthen. Lots of other muscles at play but to keep it simple these are two opposites that have to work together. So at the same time your bicep needs to be told one thing while the triceps has to be told the opposite. Instead the timing is off and both get told: contract ... oh no, lengthen ... oh no static, not sure ... oh yeah contract. Suddenly as you go to scratch your eyebrow, bam you poke yourself instead.
affected is offline  
The Following 4 Users Say Thank You to affected For This Useful Post:
4tloml (03-19-2017), Angiegal (03-19-2017), frankb (03-19-2017), Kristina1 (03-18-2017)
Old 03-18-2017, 05:36 PM #4 (permalink)
ShiftKicker's Avatar
Moderator
Forum Moderator
 
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,014
ShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to behold
♥ ShiftKicker ShiftKicker is offline
Moderator
Forum Moderator

ShiftKicker's Avatar
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,014
ShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to behold
Default Re: is coordination affected? or is it an issue of stiffness

I am a person who has poked herself in the eye with a fork, chopsticks, business end of a toothbrush, and the handle of a butter knife due to spasticity. Tillie describes it very well. It takes a while to remember you have to be very deliberate with every action and not just depend on body memory to get things where they need to be.

Upper Motor issues also include the feedback your brain gets from muscles as you use them. So, not only is your brain struggling to get messages through to your muscles, but it's only getting half the story back about where your limbs and digits are at any given time. It's like a terrible game of "telephone"- with the final message ending up way different than the initial command.
ShiftKicker is offline  
The Following 3 Users Say Thank You to ShiftKicker For This Useful Post:
4tloml (03-19-2017), Angiegal (03-19-2017), Kristina1 (03-18-2017)
Old 03-18-2017, 05:36 PM #5 (permalink)
Atsugi's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,593
Atsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant future
♥ Atsugi Atsugi is offline
Extremely Helpful Member
Forum Moderator

Atsugi's Avatar
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,593
Atsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant futureAtsugi has a brilliant future
Default Re: is coordination affected? or is it an issue of stiffness

I've never heard of ALS affecting the coordination, per se....However, if a muscle in your hand is paralyzed, limp and useless, then another muscle might try to make up for it.
Atsugi is offline  
Old 03-18-2017, 08:00 PM #6 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,375
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is offline
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,375
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: is coordination affected? or is it an issue of stiffness

Definitely shiftkicker! Chris and I discussed this a bit in the early days and we would watch him doing things and see it happen.

He may want to reach out and pick up a coffee cup, he would reach a bit, kind of stop but you could see he was intending to still be reaching, then his hand would shoot forward a few inches suddenly and if too close could knock the cup over.

It's really obvious when you observe attempts to walk and that game of telephone is wreaking havoc with so many muscles at once.

When Chris could still walk in a way that looked perfectly normal, we discovered that he could not do the same thing when trying to walk fast or even run. (this is what was so appalling about that pt making a PALS move fast). As soon as it had to be done in a hurry all the coordination would be just gone.

This was all spasticity, rather than individual muscles being paralysed. Chris had a lot of UMN involvement which is why he was so rigid (spasticity really mean increased muscle tension), uncoordinated and experienced so much pain.
affected is offline  
Thanks from
Kristina1 (03-18-2017)
Old 03-18-2017, 08:32 PM #7 (permalink)
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 181
Kristina1 is on a very distinguished road
Kristina1 Kristina1 is online now
Member
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 181
Kristina1 is on a very distinguished road
Default Re: is coordination affected? or is it an issue of stiffness

That makes sense. I had come across the term "spasticity" regarding ALS but did not know what it meant. Thanks for explaining!
Kristina1 is online now  
Closed Thread

Tags
als, fingers, food, muscles, stiffness, thumb


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Leg Stiffness Labinma General Discussion About ALS/MND 10 11-04-2016 09:10 AM
Male, 39, non-vet, limb weakness and coordination problems MinneSP Do I Have ALS? Is This ALS? 3 04-19-2016 01:07 AM
Lack of coordination and bulbar questions Mike in Maine People With ALS - "PALS" 3 09-14-2015 05:08 PM
Stiffness Amylou29 Do I Have ALS? Is This ALS? 29 01-10-2014 05:21 PM
stiffness lydia Do I Have ALS? Is This ALS? 7 10-18-2008 11:53 AM


All times are GMT -5. The time now is 01:11 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016