Arlee
Member
- Joined
- Feb 17, 2017
- Messages
- 24
- Reason
- PALS
- Diagnosis
- 11/2016
- Country
- US
- State
- USA
- City
- L.C
First I am totally amazed by everything in the forum. In the past hour or so I have cried and laughed and realized we all have a lot in common. Not just ALS, but emotions and stories, support and heartache and more.
I was diagnosed in November of 2016. Originally the thoughts being passed around by my medical peeps was a mini stroke. Hey I could live with that! I thought with Gods Blessings and a good PT I would be back in the saddle again in no time! Well...I ended up in the hospital with what started out as a pimple mark on my cheek, that the Nurse said she could fix, with a knife. Yep I said nurse but she had a helper, a tech. Next morning I woke up looking like Shreks cousin with one eye. Well I beat the "Nurse" to work that next morning and when the Dr saw it she said (real Dr) you need to go to the ER or you could lose your eye...I guess you can imagine where I was heading about 30 seconds later.
So on the 3rd day of being in the hospital talking about major face surgery this young lady comes in and says I need to walk with her, PT Girl, no problem. She asked me why I was walking with a limp. I said I don't know. I woke up one morning a couple of months ago and my arm and leg was asleep, but they never woke up. She didnt laugh a bit when I told her they were just really tired.
She then sent her friend the OT to see me. After touching my nose and pulling my arms and rolling my muscles, she asks me to touch my pinky and thumb together. Left hand no problem, Right hand I needed super glue to get them to touch. She said that could be a problem. I said "yeah right" I look like Shreks cousin and was going into major surgery and me not touching my pinky finger to my thumb was a problem...
That my new friends was the trigger point that set me on my course to being diagnosed with ALS. After seeing 2 Neuros, my PC said that he was concerned that I may have a very exotic or possibly a very rare condition, so he sent me to the University of Florida hospital (shands) . He is the best Dr. He made it sound so exciting that I actually wanted to go to the University of Fl.
Once there, they took so many MRI's and blood I wasn't sure if I was going to make it through the diagnosis part. One day they took so much blood I ran dry? Yep 3 sticks later I was told to drink a lot of water and come back the next day. Whats that old saying "the well ran dry" S
o when the dust cleared and the tests were done and the results were back, that's when the Dr told me. I still didn't really believe him. Both of my Doctors there are not just Doctors but Professors. Neurology Professors. So when I asked him if maybe I should go to the Mayo Place he said who do you think taught them? He's such a cool Doctor.
Wow I just realized I have really been babbling. I came here to the ALS Forum looking for help to a serious problem. I was mad as a wet hornet because for the umpteenth time UPS will not deliver my packages because I cant get to the door fast enough. A package disappeared a while back they say stolen I say not delivered but it does not matter they wont deliver w/o a signature now and nobody at UPS will do anything. I'm in my chair 80% of the time and when I walk with the walker or cane It is serious slow motion. so I try not to go to the bathroom between 1 and 5PM LOL.
I have done everything to avoid UPS deliveries but some companies are contracted to use them, so I am screwed., and get this my drug company uses those idiots. Don't try to complain, that creature who runs their delivery office, she had the audacity to say there are a lot of disabled people who have no problems signing for their packages. I don't care if she is a girl she needs her nose tweaked! If anyone has any ideas I could use them.
Well the pleasure has been all mine here today and I hope to make a few friends as well. The kind that understand and don't gush all over you... This has been quite an experience so far for me and I am sure the rest of you as well. I guess I could say I would like to write a book about my experience but I will stick to just short stories. I am a procrastinator and books take a long time to write! My first short story will be about when I met Jesus in the MRI booth getting a brain scan with this thing locked around my face and my body slid into a tomb. O M G! Until later
Arlee
I was diagnosed in November of 2016. Originally the thoughts being passed around by my medical peeps was a mini stroke. Hey I could live with that! I thought with Gods Blessings and a good PT I would be back in the saddle again in no time! Well...I ended up in the hospital with what started out as a pimple mark on my cheek, that the Nurse said she could fix, with a knife. Yep I said nurse but she had a helper, a tech. Next morning I woke up looking like Shreks cousin with one eye. Well I beat the "Nurse" to work that next morning and when the Dr saw it she said (real Dr) you need to go to the ER or you could lose your eye...I guess you can imagine where I was heading about 30 seconds later.
So on the 3rd day of being in the hospital talking about major face surgery this young lady comes in and says I need to walk with her, PT Girl, no problem. She asked me why I was walking with a limp. I said I don't know. I woke up one morning a couple of months ago and my arm and leg was asleep, but they never woke up. She didnt laugh a bit when I told her they were just really tired.
She then sent her friend the OT to see me. After touching my nose and pulling my arms and rolling my muscles, she asks me to touch my pinky and thumb together. Left hand no problem, Right hand I needed super glue to get them to touch. She said that could be a problem. I said "yeah right" I look like Shreks cousin and was going into major surgery and me not touching my pinky finger to my thumb was a problem...
That my new friends was the trigger point that set me on my course to being diagnosed with ALS. After seeing 2 Neuros, my PC said that he was concerned that I may have a very exotic or possibly a very rare condition, so he sent me to the University of Florida hospital (shands) . He is the best Dr. He made it sound so exciting that I actually wanted to go to the University of Fl.
Once there, they took so many MRI's and blood I wasn't sure if I was going to make it through the diagnosis part. One day they took so much blood I ran dry? Yep 3 sticks later I was told to drink a lot of water and come back the next day. Whats that old saying "the well ran dry" S
o when the dust cleared and the tests were done and the results were back, that's when the Dr told me. I still didn't really believe him. Both of my Doctors there are not just Doctors but Professors. Neurology Professors. So when I asked him if maybe I should go to the Mayo Place he said who do you think taught them? He's such a cool Doctor.
Wow I just realized I have really been babbling. I came here to the ALS Forum looking for help to a serious problem. I was mad as a wet hornet because for the umpteenth time UPS will not deliver my packages because I cant get to the door fast enough. A package disappeared a while back they say stolen I say not delivered but it does not matter they wont deliver w/o a signature now and nobody at UPS will do anything. I'm in my chair 80% of the time and when I walk with the walker or cane It is serious slow motion. so I try not to go to the bathroom between 1 and 5PM LOL.
I have done everything to avoid UPS deliveries but some companies are contracted to use them, so I am screwed., and get this my drug company uses those idiots. Don't try to complain, that creature who runs their delivery office, she had the audacity to say there are a lot of disabled people who have no problems signing for their packages. I don't care if she is a girl she needs her nose tweaked! If anyone has any ideas I could use them.
Well the pleasure has been all mine here today and I hope to make a few friends as well. The kind that understand and don't gush all over you... This has been quite an experience so far for me and I am sure the rest of you as well. I guess I could say I would like to write a book about my experience but I will stick to just short stories. I am a procrastinator and books take a long time to write! My first short story will be about when I met Jesus in the MRI booth getting a brain scan with this thing locked around my face and my body slid into a tomb. O M G! Until later
Arlee
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