CarolSue
Distinguished member
- Joined
- Dec 16, 2015
- Messages
- 123
- Reason
- PALS
- Diagnosis
- 01/2016
- Country
- US
- State
- Kansas
- City
- Middle America
I wrote a while back about the laryngospasm I had the misfortune of experiencing and found there are other ALS patients that also suffer with this.
I've had 5 or 6 all total. None of which where as bad as the first. With the subsequent spasms I could at least get a little air in and they didn't last as long as the first one.
What I want some opinions on is a condition called Sensory Neuropathic Cough. I had this condition about 15 years ago and it lasted almost 5 years. Get a horrible tickle and had coughing fits till I gagged, etc etc. My personal Dr and a pulmonolgist just couldn't figure it out. It just stopped on it's own. Well now I know it was Sensory Neuropathic Cough. So the Dr has a video on Utube and said in severe cases the coughing fit could end with a laryngospasm.
They say this tickle or other trgger that brings on the cough/laryngospasm can be treated by neuralgia drugs because it is caused by damaged nerve endings. So we treat pain from neuralgia with neuralgia drugs so they tried them on those suffering form the cough/spasm.
I've started getting those tickles in my throat again and So I'm wondering if the same medication would help ALS patients with the laryngospasms? The drugs listed are amitriptyline, desipramine, gabapentin, etc. Anybody have an opinion about whether it will help us?
Thank you all for your help.
CaroSue
I've had 5 or 6 all total. None of which where as bad as the first. With the subsequent spasms I could at least get a little air in and they didn't last as long as the first one.
What I want some opinions on is a condition called Sensory Neuropathic Cough. I had this condition about 15 years ago and it lasted almost 5 years. Get a horrible tickle and had coughing fits till I gagged, etc etc. My personal Dr and a pulmonolgist just couldn't figure it out. It just stopped on it's own. Well now I know it was Sensory Neuropathic Cough. So the Dr has a video on Utube and said in severe cases the coughing fit could end with a laryngospasm.
They say this tickle or other trgger that brings on the cough/laryngospasm can be treated by neuralgia drugs because it is caused by damaged nerve endings. So we treat pain from neuralgia with neuralgia drugs so they tried them on those suffering form the cough/spasm.
I've started getting those tickles in my throat again and So I'm wondering if the same medication would help ALS patients with the laryngospasms? The drugs listed are amitriptyline, desipramine, gabapentin, etc. Anybody have an opinion about whether it will help us?
Thank you all for your help.
CaroSue