codyclan
Distinguished member
- Joined
- Jan 26, 2014
- Messages
- 402
- Reason
- Lost a loved one
- Diagnosis
- 02/2014
- Country
- US
- State
- VA
- City
- Round Hill
I do my research and am well connected with lots of resources, but sometimes I feel like when I ask for something specific that is needed from a service provider they don't listen to me.
For medicare funding purposes we need copies of notes from a face to face appt with a primary care doc. But because we are still waiting on an appropriate wheelchair, it will be very difficult to get my PALS in for an office visit. I asked if I could make an appointment and then have doc facetime with my PALS who would be at home with caregiver. They said they could give me a letter saying he has ALS. Then they said call hospice, then they said call PT--UGH. Just need notes from a visit. After 6 phone calls they finally had doc call me and he agreed to facetime option. Faxed notes--all good--but geez....
I feel like I am saying "we are wet and need an umbrella" and people keep trying to give me gloves and scarves and earmuffs, but no umbrella, no matter how many times I ask specifically. So frustrating!!!
Maybe it should be the title of a book :???:
Tracy
For medicare funding purposes we need copies of notes from a face to face appt with a primary care doc. But because we are still waiting on an appropriate wheelchair, it will be very difficult to get my PALS in for an office visit. I asked if I could make an appointment and then have doc facetime with my PALS who would be at home with caregiver. They said they could give me a letter saying he has ALS. Then they said call hospice, then they said call PT--UGH. Just need notes from a visit. After 6 phone calls they finally had doc call me and he agreed to facetime option. Faxed notes--all good--but geez....
I feel like I am saying "we are wet and need an umbrella" and people keep trying to give me gloves and scarves and earmuffs, but no umbrella, no matter how many times I ask specifically. So frustrating!!!
Maybe it should be the title of a book :???:
Tracy