rose
Extremely helpful member
- Joined
- Mar 29, 2008
- Messages
- 2,925
- Reason
- DX MND
- Diagnosis
- 7/2008
- Country
- US
- State
- Maryland
- City
- Anytown
Hi everyone, I was torn as to which forum I should post this in. When I scroll down the PBP Forum, it does not seem super active. It was a toss-up between the PALS forum and this one, so I'm putting it here. If a moderator wants to move it, that is a-okay with me.
My blog is mostly about life with a feeding tube. There are plenty of adults out there who have a peg because of cancer or other conditions that do not affect the bulbar facial muscles. But, in the motor diseases world, feeding tubes are most often placed for those who have bulbar weakness.
I've started a section specifically for women, and the first topic is for women with bulbar atrophy, whether or not they have a peg tube.
The link is below.
Cosmetic compensating for bulbar lip changes | Tube Chic
My blog is mostly about life with a feeding tube. There are plenty of adults out there who have a peg because of cancer or other conditions that do not affect the bulbar facial muscles. But, in the motor diseases world, feeding tubes are most often placed for those who have bulbar weakness.
I've started a section specifically for women, and the first topic is for women with bulbar atrophy, whether or not they have a peg tube.
The link is below.
Cosmetic compensating for bulbar lip changes | Tube Chic