Cornelia
Active member
- Joined
- Sep 17, 2007
- Messages
- 31
- Reason
- Learn about ALS
- Country
- US
- State
- NC
- City
- Charlotte
Hi I am new to this forum. It seems like there are a lot of caring and kind people here.
I was wondering if you could provide some feedback to my story
I am 49 years old. Back in April of 07 I cought a bad cold, the sore throat never went
away, and then turned into a feeling of a lump in my throat. I then also developed a
burning sensation along the right side of my tongue and it has been hurting since then.
About 5 weeks ago I noticed that my hands had a tremor in them, some days it seems
a little better, but then not. I have fasticulations in all my muscles. My upper arm muscles burn sometimes, like I did some serious weight lifting. I am having more trouble sleeping than I usually do. I have a good NP and she is sending me around for
alot of tests. At one point when I put her on the spot, I asked her do I have MS, and she said no she did not think so but I might have some sort of muscular dystrophy, but
she was not going to give me a diagnosis of ALS.......sooo now that I was really scared
She wrote me a perscription for zanax and an MRI. I went to see 2 Neuro's. The first one basically discounted any ALS and said it was anxiety (which made my husband very happy). The second one gave me a better exam and I am going to have an EMG done on Sept 27. She also stated ALS would be unlikely, but as I am having more and more
testing done and they are coming back normal. I am becoming very scared that ALS
is going to be the only thing left on the table.
Thank you for letting me tell my story
I was wondering if you could provide some feedback to my story
I am 49 years old. Back in April of 07 I cought a bad cold, the sore throat never went
away, and then turned into a feeling of a lump in my throat. I then also developed a
burning sensation along the right side of my tongue and it has been hurting since then.
About 5 weeks ago I noticed that my hands had a tremor in them, some days it seems
a little better, but then not. I have fasticulations in all my muscles. My upper arm muscles burn sometimes, like I did some serious weight lifting. I am having more trouble sleeping than I usually do. I have a good NP and she is sending me around for
alot of tests. At one point when I put her on the spot, I asked her do I have MS, and she said no she did not think so but I might have some sort of muscular dystrophy, but
she was not going to give me a diagnosis of ALS.......sooo now that I was really scared
She wrote me a perscription for zanax and an MRI. I went to see 2 Neuro's. The first one basically discounted any ALS and said it was anxiety (which made my husband very happy). The second one gave me a better exam and I am going to have an EMG done on Sept 27. She also stated ALS would be unlikely, but as I am having more and more
testing done and they are coming back normal. I am becoming very scared that ALS
is going to be the only thing left on the table.
Thank you for letting me tell my story