Methylcobalamin daily B12 injections

[Firefly]

Hi everyone,

I did a search on here but could not find any threads on the Methylcobalamin B12 daily injections.

ALS worldwide recommends and supports the use of this.
I'm having a hard time getting any of my providers to write me an rx.

I've told them I will pay out of pocket. I at least want the opportunity
to try it.

I'm wondering if anyone has used it and if so, did you have
any favorable results?

Thanks so much!

 

[laurel]

Hi Firefly,
Try searching again as I found it when I searched just using Methylcobalamin. There is a discussion about it. My husband doesn't have ALS but has CIDP. He takes subcutaneous injections of it 5 days a week. We buy it without prescription at a compounding pharmacy, but we live in Canada. Try search B12 as well.
Laurel

 

[Firefly]

Thank you Laurel,
I found it!

 

[Trixie80]

My doctor told me B12 shots are not supported by ALS Canada so im not able to get a rx

 

[bear1973]

that's just totally dumb. Print out the als untangled review and bring that in to your doc.... there should be no reason not to get an Rx....especially because it's harmless

 

[Trixie80]

Thats what i said Bear. But nope she wont give me one. Seems she says no to a lot of my requests but its hard to get another referal. But i may ask my GP for an rx

 

[vltsra]

I just got my husband's neurologist to write a prescription. We have to get it from a compounding pharmacy. You might try an alternative medicine doctor or ask a compounding pharmacy about doctors.

V

 

[ShiftKicker]

Trixie- are you at GF Strong with Dr Briemberg?

 

[Trixie80]

Shiftkicker- yes i am

 

[ShiftKicker]

Oh, ugh. I'm not the only one who thinks she's a bit conservative then...

Yeah, you won't get much in the way of forward thinking there. V's right- seek another doctor. It doesn't have to be an ALS specialist to get a prescription for the B12. A family doctor would be fine.

 

[bear1973]

Yes - Shiftkicker is right....I got mine from my GP. I just printed out the ALS worldwide article (...which recommends how the script should be written too) and highlighted the parts for my GP to read....done. The easier you make it for docs the more likely they'll just do it.

Docs have varying opinions on alternative methods... a MM doctor, my GP and my neuro were all ok with a medical marijuana script although I've heard others will not do it.

sometimes I get tired of seemingly having to go to my doc for a script for sooooo much

 

[Gorby]

I also see Dr. B. at GF Strong. I agree that she is very conservative. So far, she has given me baclofen and an anti-depressant. That's it. She has even resisted prescribing neudexta, although I am planning to push her for a prescription at my next appointment.

I have considered the B12. I would also be interested to hear any positive reports as I found the literature not very convincing.

 

[rknt50a]

At the big ALS MND symposium in December, the presentation I heard indicated that the study patients who responded got the B12 very early in the disease and had to be taking it for years before their data distinguished them.

I hope that might be helpful in decisions.

 

[Trixie80]

Gorby - i asked dr b for a neudexta rx and was told its not available in canada