- Joined
- Nov 18, 2014
- Messages
- 4,873
- Reason
- PALS
- Diagnosis
- 08/2015
- Country
- US
- State
- South
- City
- The Beach
I went to Mayo today and met with a pain management doctor. He recommended my trying out their pain management comprehensive program. He has never had an ALS diagnosed patient in the program but has had MS. The program seems counter intuitive to what I imagine would be appropriate treatment for my pain but the pain I am experiencing is consuming me and taking my function away. It's a three-week program.
The Director said Medicare and my supplement would cover all costs except the hotel. Jacksonville is a two hour drive so a hotel and food would be my only expense.
I also talked to a PA who works there and told her my concerns about "strengthening muscles" and she said that the exercises I would do would focus on ROM and very light stretches with rubber bands. One of the key components is group therapy as relates to various areas of pain management, stress, socialization, etc.
Any thoughts? I've not had a full 8-hour day out of bed in months and the days look exhausting.
Right now I feel like I could do so much more if I could reduce the pain so I'm torn.
Overview - Pain Rehabilitation - Mayo Clinic
Here's the link to the web site describing the program. Also is a PDF of their weekly activities. It's 3 weeks.
The Director said Medicare and my supplement would cover all costs except the hotel. Jacksonville is a two hour drive so a hotel and food would be my only expense.
I also talked to a PA who works there and told her my concerns about "strengthening muscles" and she said that the exercises I would do would focus on ROM and very light stretches with rubber bands. One of the key components is group therapy as relates to various areas of pain management, stress, socialization, etc.
Any thoughts? I've not had a full 8-hour day out of bed in months and the days look exhausting.
Right now I feel like I could do so much more if I could reduce the pain so I'm torn.
Overview - Pain Rehabilitation - Mayo Clinic
Here's the link to the web site describing the program. Also is a PDF of their weekly activities. It's 3 weeks.