- Joined
- Nov 18, 2014
- Messages
- 4,887
- Reason
- PALS
- Diagnosis
- 08/2015
- Country
- US
- State
- South
- City
- The Beach
As I posted a lengthy informative status on FB today is was mainly to inform distant friends and family of my diagnosis and let them know about ALSA. I was trying to be informative but couldn't help posting some of the things that hurt me along the way. Things like being called "the ALS" at a local doctor's office, friends telling me doctors make mistakes and "you'll beat this."
I try to be a productive person so as I was reading comments I recognized that I had an option of feeling bad or turning some of my disappointments into educational opportunities for others. I still have access to over 1,000 employees at the college via group e-mail. That will end on March 10.
I'd like the assistance from PALS, CALS, and others. Just reply to this post with statements that help, hurt, educate, and further understanding. I'll sort it out and compose a group post for the folks at the college (we've lost 3 faculty members to ALS). Keep in mind that most of the people reading have no clue, other than the Ice Bucket Challenge, how hard it is to deal with ALS, both as a PAL and CAL.....and also as close family members and friends.
Thank you all for helping me.
I try to be a productive person so as I was reading comments I recognized that I had an option of feeling bad or turning some of my disappointments into educational opportunities for others. I still have access to over 1,000 employees at the college via group e-mail. That will end on March 10.
I'd like the assistance from PALS, CALS, and others. Just reply to this post with statements that help, hurt, educate, and further understanding. I'll sort it out and compose a group post for the folks at the college (we've lost 3 faculty members to ALS). Keep in mind that most of the people reading have no clue, other than the Ice Bucket Challenge, how hard it is to deal with ALS, both as a PAL and CAL.....and also as close family members and friends.
Thank you all for helping me.