gooseberry
Extremely helpful member
- Joined
- Jul 2, 2014
- Messages
- 3,501
- Reason
- Lost a loved one
- Diagnosis
- 5/2014
- Country
- US
- State
- FL
- City
- Tampa
Steve started his VA assessment today. It will go thru Friday morning. Here are a few things we learned:
Losses happen even when you dont know it.
Being stubborn doesnt get you very far with this disease. Using your tools is what helps maintain independence.
The more stubborn you are the more tools you end up with.
ALS is even stranger than I thought. At our support group we ranged in age from late 30s to 80. Thin, heavy set, slow progression, 5 months from walking to trache. Odd and mysterious disease.
If a contractor is reliable and gets good recommendations, people wait 6 months to start renovations and pay more for it.
If your pals dies from a fall or for some other reason at home, call your als team immediately. Your als team needs to speak with the coroner so cause of death is als. One woman was getting nothing financially with 2 small kids because her pals cause of death was barbituates.
More to come....
Losses happen even when you dont know it.
Being stubborn doesnt get you very far with this disease. Using your tools is what helps maintain independence.
The more stubborn you are the more tools you end up with.
ALS is even stranger than I thought. At our support group we ranged in age from late 30s to 80. Thin, heavy set, slow progression, 5 months from walking to trache. Odd and mysterious disease.
If a contractor is reliable and gets good recommendations, people wait 6 months to start renovations and pay more for it.
If your pals dies from a fall or for some other reason at home, call your als team immediately. Your als team needs to speak with the coroner so cause of death is als. One woman was getting nothing financially with 2 small kids because her pals cause of death was barbituates.
More to come....
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