NeedCourage
Active member
- Joined
- Feb 22, 2014
- Messages
- 73
- Reason
- Lost a loved one
- Diagnosis
- 12/2013
- Country
- US
- State
- PA
- City
- SW
Hello to all.
Have any of you tackled the long journey of ALS without a lift?
We are surely at the point where a lift would normally be considered
and/or necessary, but we are reluctant.
I am still able to move my pALS around with transfer boards and a
scooter. He has no lower body strength; little torso muscle, and arms are
weakening. Breathing is the main issue we face and was the first
symptom. We are hanging in there pretty well for two old *arts 78 and 65
battling the beast of all beasts!
Toby is very negative about hoyer type lifts; I don’t know if it’s fear or finances or
more lack of control. We don’t exchange a lot of thoughts aboutthe disease itself or his feelings. He is a sweet quiet man. Motto was: "Never complain; never explain".
Our home is very crowded since moving solely to the first floor of our
small bungalow and frankly I cannot imagine those gigantic ‘grasshoppers’
crawling around here. My legs are constantly badly bruised from bumping
into corners etc., as it is.
He will not be adding a trach or feeding tube … so all I can imagine is that
he will be bed bound. I cannot get him into the car anymore. Obviously it’s just
the two of us 24/7. The whole toileting thing is getting much harder.
I was just curious how someone might become totally disabled and NOT use
lifts.
Thanks to all who even read this!
xoxo
Nancy
Have any of you tackled the long journey of ALS without a lift?
We are surely at the point where a lift would normally be considered
and/or necessary, but we are reluctant.
I am still able to move my pALS around with transfer boards and a
scooter. He has no lower body strength; little torso muscle, and arms are
weakening. Breathing is the main issue we face and was the first
symptom. We are hanging in there pretty well for two old *arts 78 and 65
battling the beast of all beasts!
Toby is very negative about hoyer type lifts; I don’t know if it’s fear or finances or
more lack of control. We don’t exchange a lot of thoughts aboutthe disease itself or his feelings. He is a sweet quiet man. Motto was: "Never complain; never explain".
Our home is very crowded since moving solely to the first floor of our
small bungalow and frankly I cannot imagine those gigantic ‘grasshoppers’
crawling around here. My legs are constantly badly bruised from bumping
into corners etc., as it is.
He will not be adding a trach or feeding tube … so all I can imagine is that
he will be bed bound. I cannot get him into the car anymore. Obviously it’s just
the two of us 24/7. The whole toileting thing is getting much harder.
I was just curious how someone might become totally disabled and NOT use
lifts.
Thanks to all who even read this!
xoxo
Nancy