I am a big supporter of Rilozule. If you haven't already, read the stickie about it. Taken early, rilozule can slow down the progression of ALS. That's been my experience. I had rapid onset and once I was on the rilozule for a few weeks, I noticed that my symptoms began to plateau. I was tempted too to go off it because of nausea. But a doctor prescribed Metonia for nausea, and once my body had adjusted to the rilozule, I went off the anti-nausea medication and was fine. No side effects since. It is the only drug there is that in any way impedes the progression of ALS, and I'm convinced that my life has been extended because of it.
- Charlene