Old 08-09-2015, 02:51 AM #16 (permalink)
Green Queen's Avatar
Very Helpful Member
 
Join Date: 2015
City: By the beach
State: Western Australia
Country: AUS
Diagnosed: 4/2016
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 1,294
Green Queen is on a very distinguished roadGreen Queen is on a very distinguished road
Green Queen Green Queen is offline
Very Helpful Member
Green Queen's Avatar
Join Date: 2015
City: By the beach
State: Western Australia
Country: AUS
Diagnosed: 4/2016
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 1,294
Green Queen is on a very distinguished roadGreen Queen is on a very distinguished road
Default Re: Breathing Test Numbers Questions

Hey Marty.
Hope you get it sorted, and that it makes a difference for you.

I also know why the company doesn't set things 'properly ' when you first buy them.
You ring them, ask how to change a setting, it works, you gush at how awesome they are, they get big heads, probably a pay rise...all big companies are in the same bowling league and cook up their evil plans together....

I'm joking of course...but also serious...

J x
Green Queen is offline  
Old 08-09-2015, 03:21 PM #17 (permalink)
Member
 
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
mpnatx mpnatx is offline
Member
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
Default Re: Breathing Test Numbers Questions

Quote:
Originally Posted by lgelb View Post
Marty, lots of people make their own adjustments, since needs vary as you go and there is some trial and error.
Here is a link to the quick start guide to the T200 (let me know if you need the one for the 100 but they are obviously pretty similar).
https://www.dropbox.com/s/5x8bffppc2...Guide.pdf?dl=0

It shows how to get into the setup screen (pg. 6) and set "full access" to the clinical menu (p.7). Obviously, you don't need to touch the circuit type since that is already set. From there, look at the settings as the picture shows. If your air is blasting you, there are 2 key settings to look at: the IPAP maximum and the tidal volume if AVAPS is enabled. They are both on the same screen. I don't know your height, but a good TV to start from might be 400 or so. IPAP, you could start at 8 or so. Unless you have pre-existing lung disease or apnea, 4 is a nice setting for EPAP, for most (you may have to scroll to see it; it's under the other two). You can try those settings, using the step-by-step shown, and you're done.

Let me know if you need anything clearer. It takes longer to type than to do!

Best,
Laurie
Laurie,
I set the TV from 600 to 400 and the epap to from 6 to 4. Mine doesn't have an ipap setting, so I couldn't adjust that one. It is so much better! Thank you so much!

One other problem is that when I breath in, it stops about three quarters and then reverses. Also breathing out does the same. Is there a setting to increase those a little bit?
You're a lifesaver!
Marty
mpnatx is offline  
Old 08-09-2015, 07:07 PM #18 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Breathing Test Numbers Questions

Yes, Marty, you want to increase the Ti min and/or max (should be in the same set of screens you were in) to get a longer breath in, and the trigger sensitivity (how soon it switches from out to in) needs to be decreased. You can also make the rise time longer in certain modes.

There are other possibilities, like your backup rate, if any, but I'm a little confused about which mode your machine is in -- if AVAPS is enabled, you should be showing an IPAP max and min that can be changed -- and the mode affects what settings can be changed. So if you can tell me the current settings, that would help. I am attaching the full manual that lists what you can change in each mode, as well.
Attached Files
File Type: pdf T200productmanual.pdf (5.61 MB, 240 views)
lgelb is offline  
Old 08-09-2015, 09:25 PM #19 (permalink)
Member
 
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
mpnatx mpnatx is offline
Member
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
Default Re: Breathing Test Numbers Questions

Hi Laurie, I was reading the manual and it says the ipap setting displays if Avaps is off.
Page 81.
I also noticed in settings that my menu has dual prescription and then mode next. No circuit type.
These are the current settings:
Dual prescription off
Mode avaps-ae
Avaps-ae rate5.0cm
Tidal volume 400 ml
Max pres 40 cm
Pressure support max and min 4.0
Epap max and min 4.0
Breath rate 12bpm
Insp time 1.0
Trigger type auto track
Rise time 3
Ramp 20 min
Circuit alarm 60 sec
Thanks!
mpnatx is offline  
Old 08-09-2015, 11:14 PM #20 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Breathing Test Numbers Questions

"Max pres" would operationally be the same as max IPAP, since your EPAP will never be > IPAP.

40?

That would blast anyone -- and possibly blow out your lungs. I would reduce it to 15 or something for now.

Ironically, your pressure support max is set way too low. That's why you were being blasted, too -- both your EPAP and IPAP were rising because they could only be separated by 4 cm! There are times when you need deeper breaths than the minimum. I'd reset that to 11, given that I'm recommending IPAP max=15 and your EPAP=4 now.

Insp time = "Ti" and is too low. Most people need more than a second. That will only apply if your backup rate is triggered, but still, I would take it up to 1.6 or so, depending on your normal breathing rate, which is?

Once we know your normal breathing rate (you can check the data screen if you aren't sure, or ask your wife to count when you're asleep and seem peaceful), set the backup rate to 2-3 breaths lower. 12 implies your normal rate is 14-15, which may be true.

As I say, I'd start w/ rise time at 6 and work your way down if desired. My bet, you'll end up at 4 or 5.

The "AVAPS rate" is set at 5 cm, the max. That's the measure of how aggressively the machine changes IPAP to respond to a target volume below range. I might set it more in the middle, 2.5cm, and see how you do.

The auto-trak trigger thing should be left alone until you make the other adjustments and then see if you're getting IPAP when you want it.

You don't need a 20 min ramp -- just delays delivery of the air you need -- unless you like it.

The circuit alarm is saying if you are offline for a minute, it'll squawk.

Let me know what does not make sense...
lgelb is offline  
Old 08-10-2015, 12:05 AM #21 (permalink)
Member
 
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
mpnatx mpnatx is offline
Member
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
Default Re: Breathing Test Numbers Questions

Thank you. These are the new settings. Did I miss something?

Avaps-ae rate5.0cm
Tidal volume 400 ml
Max pres 15 cm
Pressure support max and min 4.0
Epap max and min 11 and 4
Breath rate 12bpm
Insp time 1.5
Trigger type auto track
Rise time 5
Ramp off by default now
Circuit alarm 60 sec
mpnatx is offline  
Old 08-10-2015, 01:29 AM #22 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Breathing Test Numbers Questions

Pressure support max should be 11 (and if you end up increasing IPAP later for any reason, increase it the same amount)

Take EPAP max back down to 4, unless you have pre-existing sleep apnea and need more. So EPAP min and max would be the same for now, lacking evidence they need not to be.

EPAP is expiratory pressure. In ALS, breathing against pressure is harder. People w/ sleep apnea need more pressure on expiration so their airways don't collapse.

Pressure support is IPAP minus EPAP -- the size of the breath. We want the machine to be able to select that within the IPAP/EPAP parameters that we set -- not hem it in -- based on how much air you are moving every minute (the target volume).

If you tell me your height, I can do better than 400 on TV. It's a formula based on height.
lgelb is offline  
Old 08-10-2015, 02:08 AM #23 (permalink)
Member
 
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
mpnatx mpnatx is offline
Member
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
Default Re: Breathing Test Numbers Questions

I'm 6' tall. Hopefully I can get it right this time. Also, I don't have anyone to count my breaths.
I'm going to set it and try it. Goodnight Laurie.
Thanks much for your patience!
Marty
mpnatx is offline  
Old 08-10-2015, 02:29 PM #24 (permalink)
Member
 
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
mpnatx mpnatx is offline
Member
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 348
mpnatx is on a very distinguished roadmpnatx is on a very distinguished road
Default Re: Breathing Test Numbers Questions

I just wanted to let everyone know that my trilogy issues have all been resolved. Got a great nights sleep for the first time in a long time. I'm very grateful for Laurie's help and patience. And, for this forum!
Gratefully yours,
Marty
mpnatx is offline  
Old 08-10-2015, 03:46 PM #25 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,659
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is offline
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,659
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: Breathing Test Numbers Questions

HOORAY!

We are indeed lucky to have Laurie here with her knowledge of bipap settings. Well done Marty
affected is offline  
Old 08-10-2015, 09:04 PM #26 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,803
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Breathing Test Numbers Questions

Tillie, you're too kind. Always happy to help, thanks for the update, Marty, and so sorry I absentmindedly assigned you a wife.

When you get a chance, check out what the SD card captures (hopefully, there is one in your machine, or you can pick one up), and we can see what your breathing rate actually is. It's always good to know where the data are being stored in case you do want evidence for making a change. But I doubt your backup rate is being triggered at the moment.

Given your height, your target volume could be as high as 460, if you ever want to try it to see if that makes you feel more rested.

--Laurie
lgelb is offline  
Closed Thread

Tags
age, breathing, clinic, fvc, mip, questions, test


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Clinic visit no breathing test? starente15 General Discussion About ALS/MND 11 08-16-2015 03:50 PM
2 questions: breathing and vision Drewsmom General Discussion About PLS 12 09-21-2014 10:22 PM
Breathing questions? skipper66 General Discussion About ALS/MND 4 05-11-2014 01:13 AM
Breathing difficulty questions lisaohgee General Discussion About ALS/MND 8 12-07-2011 01:34 PM
What do the numbers mean? missmineau General Discussion About ALS/MND 1 02-16-2011 09:52 AM
What do these numbers mean? momofsixkids60 General Discussion About ALS/MND 8 02-13-2011 11:40 PM
Question about breathing test score lisaohgee General Discussion About ALS/MND 10 09-06-2010 01:36 PM
ALS Specialist could not answer questions about breathing problems! Andy2020 General Discussion About ALS/MND 22 03-07-2010 10:40 PM
Test Questions vrt749 Do I Have ALS? Is This ALS? 2 06-18-2008 02:54 PM
Airplane travel - breathing questions barbaraW General Discussion About ALS/MND 22 06-23-2007 01:34 PM


All times are GMT -5. The time now is 05:15 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016