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Nikki J

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Mar 22, 2012
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16,378
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
As you know August has been designated as a time for another Ice Bucket challenge. It would be fabulous if last year was repeated but unlikely

However today one of the news stations was preparing theirs which made me happy

I also just got an email from the Mass General cure ALS fund. They have a matching grant this year! I expect they are not the only ones who do so have a look around and see if any of your favorite ALS organizations have that. If anyone has corporate matching you could quadruple your donation!

I usually donate to MGH earlier in the year I am glad I held off this year!
 
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Thanks for sharing! And I am wearing my shining stars shirt today!
 
Here is one I did a couple of weeks ago on our trip to Yosemite (with a couple of variations) reminding people we need their help UNTIL THERE's A CURE

family IBC - https://youtu.be/MorFULfSnvE - 22 seconds
family doing IBC in groupings and scrolling info titles - https://youtu.be/lpSBsaTM5B0 - 2:22
combination of last year's IBC and the family grouping set to music - https://youtu.be/DSSqqr8krg0 - 3:44

I have created and presented a fundraising idea and it was approved by the facility. All we are doing is waiting for 1 piece of the puzzle to fall into place and there will be a spot for IBC at the event. I wish I could share it, but need to hold off until we get that one piece. I am nervously excited.

Doug
 
Thanks for sharing these great video clips. You are all truly inspiring.
Charlene
 
Glad to see lots of ice in Rob's challenge...looks like we AZ people are doing it...that water in Yosemite was cold as they had snow 2 days before we did it...
 
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