LifeEnthusiast
Distinguished member
- Joined
- Apr 13, 2015
- Messages
- 336
- Reason
- DX MND
- Diagnosis
- 04/2015
- Country
- CA
- State
- Canada
- City
- Somewhere In
I have a claw right hand. Thumb is going. Extensor is shot but flexor is still relatively reliable.
Yet, every so often -- and ironically this started at least two years prior to any outward symptoms -- my brain and hand disconnect. So whatever, I'm holding just drops to the floor. No warning. Just boom!
In this case tonight, while visiting a friend, an expensive glass of red wine in an expensive glass, of course, dropped to the fireplace surround and shattered and stained anything and everything within proximity..
So damn embarrassing. And no I hadn't had a few. It was the first glass. Ughh. The tripping, slow walking, stair struggle, etc, I have sorted of gotten used to as much as one can. But this darn thing is so unpredictable. And, of course, it's my dominant hand. Perhaps, I should really be thinking twice before I hold something hot as well.
I'm really wondering if this was my first symptom, but one that was so random that it never raised any eyeballs. Just a thought. Perhaps this might be better posted under rants.
Thanks for listening. No one else really gets it. While I enjoy people saying as we sit around a table "but you look great", it reminds me that they have no concept as to what lies ahead. And they have absolutely no concept of the enormous effort I have to put in to each day and the situations I avoid just to appear somewhat normal.They don't see me crawling my hands up my legs just to get off the floor. When the arms go, it will just be me kissing the pavement. I feel better getting that off my chest. Thanks for indulging me.
Yet, every so often -- and ironically this started at least two years prior to any outward symptoms -- my brain and hand disconnect. So whatever, I'm holding just drops to the floor. No warning. Just boom!
In this case tonight, while visiting a friend, an expensive glass of red wine in an expensive glass, of course, dropped to the fireplace surround and shattered and stained anything and everything within proximity..
So damn embarrassing. And no I hadn't had a few. It was the first glass. Ughh. The tripping, slow walking, stair struggle, etc, I have sorted of gotten used to as much as one can. But this darn thing is so unpredictable. And, of course, it's my dominant hand. Perhaps, I should really be thinking twice before I hold something hot as well.
I'm really wondering if this was my first symptom, but one that was so random that it never raised any eyeballs. Just a thought. Perhaps this might be better posted under rants.
Thanks for listening. No one else really gets it. While I enjoy people saying as we sit around a table "but you look great", it reminds me that they have no concept as to what lies ahead. And they have absolutely no concept of the enormous effort I have to put in to each day and the situations I avoid just to appear somewhat normal.They don't see me crawling my hands up my legs just to get off the floor. When the arms go, it will just be me kissing the pavement. I feel better getting that off my chest. Thanks for indulging me.