tony2006
Member
- Joined
- Feb 13, 2013
- Messages
- 13
- Reason
- PALS
- Diagnosis
- 02/2013
- Country
- US
- State
- tx
- City
- fort worth
Hello everyone,
2 years ago this month I was told by a group of trainees doc that I definitely have ALS at UT Southwestern in Dallas.Last month I was losing so much energy doctor at hospital get me a dose of IVIG for 3 days.I went home feeling so much better and start doing PT.Last week I lost all of those gain and feel weak again.My newest neuro is reffering seeking third opinion by doctor Stanley Appel in houston.I am so stressful and confusing do not know what to do.Muscle twitching,vibrating is getting worse.I need suggestions,advice or feedback please.
I have ALS and 1 more serious disease or what?I am so tired all of these years still in limbo.
2 years ago this month I was told by a group of trainees doc that I definitely have ALS at UT Southwestern in Dallas.Last month I was losing so much energy doctor at hospital get me a dose of IVIG for 3 days.I went home feeling so much better and start doing PT.Last week I lost all of those gain and feel weak again.My newest neuro is reffering seeking third opinion by doctor Stanley Appel in houston.I am so stressful and confusing do not know what to do.Muscle twitching,vibrating is getting worse.I need suggestions,advice or feedback please.
I have ALS and 1 more serious disease or what?I am so tired all of these years still in limbo.