codyclan
Distinguished member
- Joined
- Jan 26, 2014
- Messages
- 402
- Reason
- Lost a loved one
- Diagnosis
- 02/2014
- Country
- US
- State
- VA
- City
- Round Hill
My hubby is bulbar onset and is currently in a slide. He still drives, but his shoulder, hand and neck weakness are becoming more debilitating. His breathing is impacted and he has a lot fatigue. We have planned a trip to Germany and Austria with our two adult daughters and to see a close friend who lives there. He refuses to use a chair or a scooter and I think that will impact his ability to enjoy the trip. The other issue is that our 23 year old daughter just accepted a job back in the DC area to be near to us. She will be driving back from Colorado on the 10th and we live the 16th for Europe. He adamant that he wants to drive back with her. However, if he does, I don't think he will be able to enjoy Europe at all. He is upset that I am 'taking this away from him'. I hate this disease!