Amandagall5
Active member
- Joined
- May 9, 2015
- Messages
- 34
- Reason
- Lost a loved one
- Diagnosis
- 12/2012
- Country
- US
- State
- OK
- City
- Midwest city
Hello,
My husband will not have a peg tube, won't use Cpap, trilogy, cough assist etc.. He can move his head a little from side to side but that's about all he can move, doesn't have much of a voice. He can still swallow fairly well so I have been feeding him a softish diet. The amount of food he eats is not a lot but he doesn't want his food puréed or blended. He lost 9 lbs in the last month. I've also noticed that parts of his face have started to twitch slightly. I can't discuss anything with him because he just says no, I don't want to talk about it, acts like he doesn't understand me,or just ignores what I say.
So I guess my question is, how do things progress from here with his body? Does he start to sleep more? What happens as he gets weaker? I know he is going to die, I just don't know how it happens.
Amanda
My husband will not have a peg tube, won't use Cpap, trilogy, cough assist etc.. He can move his head a little from side to side but that's about all he can move, doesn't have much of a voice. He can still swallow fairly well so I have been feeding him a softish diet. The amount of food he eats is not a lot but he doesn't want his food puréed or blended. He lost 9 lbs in the last month. I've also noticed that parts of his face have started to twitch slightly. I can't discuss anything with him because he just says no, I don't want to talk about it, acts like he doesn't understand me,or just ignores what I say.
So I guess my question is, how do things progress from here with his body? Does he start to sleep more? What happens as he gets weaker? I know he is going to die, I just don't know how it happens.
Amanda