livelybunch
New member
- Joined
- May 14, 2015
- Messages
- 3
- Reason
- Loved one DX
- Diagnosis
- 04/2015
- Country
- Uni
- State
- TX
- City
- TYLER
This is my first post. My mother is 65 and was diagnosed with ALS and FTD two weeks ago. We knew something was happening with her because little pieces of her were slipping away. The symptoms began in Nov. 2013. It started with upset emotions, moved to losing the ability to speak, then swallow, now her left arm is not working. She has a PEG which helps tremendously. I am an only child and my father is 72 and taking care of her. We have home-health nurses 40 hours a week, but she only wants to be with my dad. She will not leave his side and gets very upset. This is the most difficult thing to watch. I live 2 hours away and go in as much as possible, as I have four children. I'm afraid there will come a time when my dad can't take care of her. We do not know what to do. It seems we do not get much help from doctors and I'm not sure if it's because there is not much we can do or we have not found the right place yet.
I've come to terms with not being able to enjoy the same moments I used to with mom. I just hurt every day. I don't know how to give her the best support. I would love to hear from people how they cope. And if you know of a good place in DFW that my dad could go to for answers/support. Do I get tested?
I've come to terms with not being able to enjoy the same moments I used to with mom. I just hurt every day. I don't know how to give her the best support. I would love to hear from people how they cope. And if you know of a good place in DFW that my dad could go to for answers/support. Do I get tested?