Old 05-13-2015, 06:26 AM #1 (permalink)
tripete's Avatar
Senior Member
 
Join Date: 2014
City: Lancaster
State: PA
Country: US
Diagnosed: 12/2014
Interest: I have been diagnosed with ALS.
Posts: 894
tripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud of
tripete tripete is offline
Senior Member
tripete's Avatar
Join Date: 2014
City: Lancaster
State: PA
Country: US
Diagnosed: 12/2014
Interest: I have been diagnosed with ALS.
Posts: 894
tripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud of
Default Swallowing

I have begun to notice that certain things can be difficult to swallow; like spaghetti. I have also noticed that my jaw gets very tired chewing. I suspect this might be the start of eating issues. What kinds of things do other PALS have difficulty swallowing? It is worse on days when I have more coughing fits which I am guessing is related to muscle fatigue.
tripete is offline  
Old 05-13-2015, 06:28 AM #2 (permalink)
tripete's Avatar
Senior Member
 
Join Date: 2014
City: Lancaster
State: PA
Country: US
Diagnosed: 12/2014
Interest: I have been diagnosed with ALS.
Posts: 894
tripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud of
tripete tripete is offline
Senior Member
tripete's Avatar
Join Date: 2014
City: Lancaster
State: PA
Country: US
Diagnosed: 12/2014
Interest: I have been diagnosed with ALS.
Posts: 894
tripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud of
Default Re: Swallowing

And oh Mark, no this is not a thread on "THAT" type of swallowing!
tripete is offline  
Old 05-13-2015, 09:03 AM #3 (permalink)
MaxEidswick's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: Pinehurst
State: Texas
Country: US
Diagnosed: 08/2013
Interest: I have been diagnosed with ALS.
Posts: 5,578
MaxEidswick is on a distinguished road
MaxEidswick MaxEidswick is offline
Extremely Helpful Member
MaxEidswick's Avatar
Join Date: 2013
City: Pinehurst
State: Texas
Country: US
Diagnosed: 08/2013
Interest: I have been diagnosed with ALS.
Posts: 5,578
MaxEidswick is on a distinguished road
Default Re: Swallowing

>And oh Mark, no this is not a thread on "THAT" type of swallowing!



enjoy every bite!
MaxEidswick is offline  
Old 05-13-2015, 09:21 AM #4 (permalink)
GregK's Avatar
Very Helpful Member
Forum Moderator
 
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,635
GregK has disabled reputation
♥ GregK GregK is offline
Very Helpful Member
Forum Moderator

GregK's Avatar
Join Date: 2013
City: Colorado Springs
State: CO
Country: US
Diagnosed: 11/2012
Interest: I have been diagnosed with ALS.
Posts: 2,635
GregK has disabled reputation
Default Re: Swallowing

O lord, has Big M led us down a dark path? ;^)

My swallowing issue is that 'stuff' tends to go down the wrong path, and I spend the rest of the day trying to clear it. This is why I opted for the peg.
GregK is offline  
Old 05-14-2015, 09:10 AM #5 (permalink)
gooseberry's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,439
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
gooseberry gooseberry is offline
Extremely Helpful Member
gooseberry's Avatar
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,439
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
Default Re: Swallowing

Steve is having issues with rice corn and seedy foods. Thin liquids sometimes.
gooseberry is offline  
Old 05-14-2015, 10:27 AM #6 (permalink)
Senior Member
 
Join Date: 2015
City: Sandyville
State: WV
Country: US
Diagnosed: 04/2015
Interest: I have been diagnosed with ALS.
Posts: 629
BlueandGold is a jewel in the roughBlueandGold is a jewel in the roughBlueandGold is a jewel in the roughBlueandGold is a jewel in the rough
BlueandGold BlueandGold is offline
Senior Member
Join Date: 2015
City: Sandyville
State: WV
Country: US
Diagnosed: 04/2015
Interest: I have been diagnosed with ALS.
Posts: 629
BlueandGold is a jewel in the roughBlueandGold is a jewel in the roughBlueandGold is a jewel in the roughBlueandGold is a jewel in the rough
Default Re: Swallowing

Pete I have the same issues with my jaw muscles tiring out. I also have issues with my jaw locking when I yawn. I'm just thankful I'm still eating but I've had to adapt, i.e. I have to re-warm my food because I take longer to eat - small bites makes it a lot easier on my jaw muscles. However, I'm still mobile and so very thankful my legs are working good.
BlueandGold is offline  
Old 05-14-2015, 01:19 PM #7 (permalink)
Very Helpful Member
 
Join Date: 2014
City: Austin
State: Tx
Country: US
Diagnosed: 06/2014
Interest: I have been diagnosed with ALS.
Posts: 1,016
nebrhahe53 is on a very distinguished road
nebrhahe53 nebrhahe53 is offline
Very Helpful Member
Join Date: 2014
City: Austin
State: Tx
Country: US
Diagnosed: 06/2014
Interest: I have been diagnosed with ALS.
Posts: 1,016
nebrhahe53 is on a very distinguished road
Default Re: Swallowing

You might try Nuedexta-it helps some people swallow better. Helped me for about 6 months.
nebrhahe53 is offline  
Old 05-15-2015, 03:11 AM #8 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,434
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is online now
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,434
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: Swallowing

Making those super smoothies that many here take in could be a key to helping. Now it won't help your swallowing improve but it will allow you to get some high calorie and nutritious stuff down easily.

So make your meal of the stuff you like smaller, let go of the stuff that is difficult or start putting it through a food processor first to break it down a little. If eating a meal takes more than 20 -30 minutes it's time to start new strategies. One of the things that happens is that it begins to take as much or more energy to consume the meal than the calories the meal contains and you are going backwards.

So if you cut down the meal size by a third or a half, and enjoyed eating it hot in one go, then drink a high powered smoothie either straight after or maybe half an hour to an hour later, you will have taken in more calories than before with far less energy spent.

Before Chris went onto puree I started putting parts of his meals through the food processor with the copping blade. It then still retained some texture, but made it so much easier to eat.
affected is online now  
Old 05-15-2015, 12:44 PM #9 (permalink)
Senior Member
 
Join Date: 2014
City: taylorsvill
State: utah
Country: US
Diagnosed: 01/2014
Interest: I have been diagnosed with ALS.
Posts: 995
bigmark1954 is a name known to allbigmark1954 is a name known to allbigmark1954 is a name known to allbigmark1954 is a name known to allbigmark1954 is a name known to allbigmark1954 is a name known to all
bigmark1954 bigmark1954 is offline
Senior Member
Join Date: 2014
City: taylorsvill
State: utah
Country: US
Diagnosed: 01/2014
Interest: I have been diagnosed with ALS.
Posts: 995
bigmark1954 is a name known to allbigmark1954 is a name known to allbigmark1954 is a name known to allbigmark1954 is a name known to allbigmark1954 is a name known to allbigmark1954 is a name known to all
Default Re: Swallowing

Quote:
Originally Posted by tripete View Post
And oh Mark, no this is not a thread on "THAT" type of swallowing!
why...I do declare....I dunno what you are talkin about.....

Chewing, swallowing, and drinking are all challenging for me. I luv to eat, but sometimes it is tricky. I often swallow stuff be for I get it chewed properly. Steak is a challenge for me because my jaw muscles get tired.
I choke on saliva most of the time, and food if I am hurried or not concentrating.
The up side is that I can count undigested corn and peanuts every morning.
bigmark1954 is offline  
Old 05-15-2015, 05:01 PM #10 (permalink)
CGARS's Avatar
Member
 
Join Date: 2012
City: St. Catharines
State: Ontario
Country: CA
Diagnosed: 06/2011
Interest: I have been diagnosed with ALS.
Posts: 307
CGARS is on a distinguished road
CGARS CGARS is offline
Member
CGARS's Avatar
Join Date: 2012
City: St. Catharines
State: Ontario
Country: CA
Diagnosed: 06/2011
Interest: I have been diagnosed with ALS.
Posts: 307
CGARS is on a distinguished road
Default Re: Swallowing

i recently (2 months ago) switched to a more pureed diet, mostly to save time, increased safety and save energy.
gotta tell ya, i don't think i've ever eaten better!
i had a bbq pork chop mash potatoes and broccoli last night. it was amazing. the other day i had a filet and shrimp. all it took was a $13 mini chopper and a can-do attitude
as we progress, it seems as if the planets must align for us to get a meal where we aren't choking, out of breath or just exhausted. God forbid if my handler doesn't have my straw at the right height or angle or even depth. not to mention the thickness of the straw, temperature of the liquid, or whether or not the nose is clear for breathing!
swallowing is such a science for a pals, gone are the days of nacho eating contests.
cheers,
Casey
CGARS is offline  
Old 05-15-2015, 09:36 PM #11 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,476
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,476
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Swallowing

Oh, yeah, this thread reminded that on another thread I should have warned about rice as vigorously as I warned about corn. But as others have pointed out, these things can be puréed.
lgelb is offline  
Closed Thread

Tags
coughing, eating, fatigue, ice, muscle, muscle fatigue, swallow, swallowing


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
difficuly swallowing flymisk Do I Have ALS? Is This ALS? 3 09-08-2013 02:26 AM
swallowing? fallinggirl People With ALS - "PALS" 6 08-24-2013 11:31 PM
swallowing sallyb People With ALS - "PALS" 13 01-28-2013 04:35 PM
Swallowing happygardener General Discussion About ALS/MND 19 04-16-2012 05:30 PM
trouble swallowing lindyramsey Tips, Tricks, and Gadgets 5 12-24-2009 08:21 PM
Swallowing advice daughter01 People With ALS - "PALS" 1 11-26-2009 06:14 AM
Swallowing problems Erica General Discussion About ALS/MND 24 09-15-2009 01:04 AM
Swallowing issues- No Peg mndireland General Discussion About ALS/MND 23 03-27-2009 04:13 PM
Swallowing ? 4rhl1981 General Discussion About ALS/MND 13 01-04-2009 10:41 PM
Swallowing Help hpasternak General Discussion About ALS/MND 1 06-05-2007 02:11 PM


All times are GMT -5. The time now is 04:40 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016