amysgarden
Active member
- Joined
- Feb 20, 2015
- Messages
- 32
- Reason
- CALS
- Country
- US
- State
- WA
- City
- Oak Harbor
My husband's neurologist wants to do a muscle biopsy on his thigh. He is scheduled for bloodwork and a thigh MRI on Monday.
We have a "probable" diagnosis of ALS. The doctor even said he is just trying to go to great lengths to make sure it is not something else. The extensive EMG was very consistent with ALS.
Now he found a positive aldolase and a positive myoglobin which he says are usually not elevated in ALS but usually in myositis or dermamyositis.
My husband agreed (thinking it was going to be a punch biopsy) but when I was looking onine, the thigh biopsies were open incisions. Now my husband is refusing. He is not at all scared of the procedure but of the damage it might do- he is already having a lot of trouble walking- how bad would it be with a muscle deep wound to his thigh?
So what were your thigh biopsies like? Could we refuse it and still get a diagnosis?
Amy
We have a "probable" diagnosis of ALS. The doctor even said he is just trying to go to great lengths to make sure it is not something else. The extensive EMG was very consistent with ALS.
Now he found a positive aldolase and a positive myoglobin which he says are usually not elevated in ALS but usually in myositis or dermamyositis.
My husband agreed (thinking it was going to be a punch biopsy) but when I was looking onine, the thigh biopsies were open incisions. Now my husband is refusing. He is not at all scared of the procedure but of the damage it might do- he is already having a lot of trouble walking- how bad would it be with a muscle deep wound to his thigh?
So what were your thigh biopsies like? Could we refuse it and still get a diagnosis?
Amy