ECpara
Senior member
- Joined
- Jan 7, 2012
- Messages
- 605
- Reason
- Lost a loved one
- Diagnosis
- 02/2012
- Country
- US
- State
- GA
- City
- Thomasville
I hesitate writing this post but I need to get it out, it's eating me up inside. Tom had his ALS clinic appointment Thursday, his breathing tests were so low. Lung capacity 20%, FVC 21%, aspiration was the highest at 29%. Last visit five months ago all were in the 40s and 50's. And before that in the 60s and 70s. So you all know what I'm getting out, the math points to ? The doctor ordered oximetry tests to be done while he's sleeping to be sure. He's hoping maybe the seal wasn't tight. But I was there during the tests and there was no problem with the mask, Tom just couldn't breathe well. He uses his Trilogy as much as he can during the day, absolutely will not tolerate it at night. I also noticed yesterday when he was having a PEG tube switch out in ambulatory care that his respiration rate even while napping on the hospital bed, was between 25 and 27 and sometimes as high as 32. That was alarming, too. He's chosen not to vent (I'm glad) but just not ready for this. Any thoughts? Will he go in his sleep one night?