Old 01-12-2015, 06:10 AM #1 (permalink)
Mike in Maine's Avatar
Member
 
Join Date: 2013
City: Pocono's
State: PA, No longer live in ME
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 243
Mike in Maine is on a distinguished road
Mike in Maine Mike in Maine is offline
Member
Mike in Maine's Avatar
Join Date: 2013
City: Pocono's
State: PA, No longer live in ME
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 243
Mike in Maine is on a distinguished road
Default VA Clinic in NYC, anyone ever use it

Does anyone have a history with the VA ALS clinic in NYC? Are they any good?


Thanks
Mike
Mike in Maine is offline  
Old 01-12-2015, 03:13 PM #2 (permalink)
gooseberry's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
gooseberry gooseberry is offline
Extremely Helpful Member
gooseberry's Avatar
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
Default Re: VA Clinic in NYC, anyone ever use it

friend of my bil goes there. Will try to get some info for you
gooseberry is offline  
Old 01-12-2015, 04:11 PM #3 (permalink)
Mike in Maine's Avatar
Member
 
Join Date: 2013
City: Pocono's
State: PA, No longer live in ME
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 243
Mike in Maine is on a distinguished road
Mike in Maine Mike in Maine is offline
Member
Mike in Maine's Avatar
Join Date: 2013
City: Pocono's
State: PA, No longer live in ME
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 243
Mike in Maine is on a distinguished road
Default Re: VA Clinic in NYC, anyone ever use it

Thanks a bunch

Mike
Mike in Maine is offline  
Old 01-14-2015, 06:15 PM #4 (permalink)
gooseberry's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
gooseberry gooseberry is offline
Extremely Helpful Member
gooseberry's Avatar
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
Default Re: VA Clinic in NYC, anyone ever use it

My brotherinlaw should see his friend on Friday so hopefully I will have some info then. We have used the VA hospital in Tampa and an outpt clinic here and have been pleasantly surprised at the quick, efficient, high quality care my husband has received. I still hear horror stories about the VA in Syracuse though.
gooseberry is offline  
Old 01-14-2015, 07:00 PM #5 (permalink)
hjlindley's Avatar
Senior Member
 
Join Date: 2011
City: Richmond
State: VA
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 764
hjlindley is on a distinguished road
hjlindley hjlindley is offline
Senior Member
hjlindley's Avatar
Join Date: 2011
City: Richmond
State: VA
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 764
hjlindley is on a distinguished road
Default Re: VA Clinic in NYC, anyone ever use it

I'm curious. If you're in Maine why not Mass General?
hjlindley is offline  
Old 01-15-2015, 05:04 AM #6 (permalink)
maryhahnward's Avatar
Member
 
Join Date: 2009
City: Wilmington
State: NC
Country: US
Diagnosed: 06/2010
Interest: I am a caregiver for someone with ALS/MND.
Posts: 442
maryhahnward is on a very distinguished road
maryhahnward maryhahnward is offline
Member
maryhahnward's Avatar
Join Date: 2009
City: Wilmington
State: NC
Country: US
Diagnosed: 06/2010
Interest: I am a caregiver for someone with ALS/MND.
Posts: 442
maryhahnward is on a very distinguished road
Default Re: VA Clinic in NYC, anyone ever use it

Veterans can get care outside of the VA system and have the VA pay for it. The Paralyzed Veterans, PVA, can help you navigate the system to ensure you get this benefit, among a multitude of other benefits.
maryhahnward is offline  
Old 01-15-2015, 02:38 PM #7 (permalink)
gooseberry's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
gooseberry gooseberry is offline
Extremely Helpful Member
gooseberry's Avatar
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
Default Re: VA Clinic in NYC, anyone ever use it

One thing we have learned Mike, and we are just starting with the VA system so you may know, is that you have to have a primary care and psych visit once per year. They does those locally in an outpatient care clinic here so you don't need a hospital for that. Services vary greatly at each facility and the primary care ordered all meds except riluzole and lexapro and klonopin. Just a little bit of info if you are starting out.
gooseberry is offline  
Old 01-17-2015, 09:02 AM #8 (permalink)
Mike in Maine's Avatar
Member
 
Join Date: 2013
City: Pocono's
State: PA, No longer live in ME
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 243
Mike in Maine is on a distinguished road
Mike in Maine Mike in Maine is offline
Member
Mike in Maine's Avatar
Join Date: 2013
City: Pocono's
State: PA, No longer live in ME
Country: US
Diagnosed: 10/2013
Interest: I have been diagnosed with ALS.
Posts: 243
Mike in Maine is on a distinguished road
Default Re: VA Clinic in NYC, anyone ever use it

All,
Just sold the big house and yard and are looking in PA by the water gap area (NY, NJ, PA line) to be closer to kids and grandkidw
Mike
Mike in Maine is offline  
Old 01-17-2015, 09:49 AM #9 (permalink)
hjlindley's Avatar
Senior Member
 
Join Date: 2011
City: Richmond
State: VA
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 764
hjlindley is on a distinguished road
hjlindley hjlindley is offline
Senior Member
hjlindley's Avatar
Join Date: 2011
City: Richmond
State: VA
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 764
hjlindley is on a distinguished road
Default Re: VA Clinic in NYC, anyone ever use it

That's a beautiful part of the country. I hope you will enjoy it.
hjlindley is offline  
Old 01-17-2015, 04:24 PM #10 (permalink)
gooseberry's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
gooseberry gooseberry is offline
Extremely Helpful Member
gooseberry's Avatar
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,456
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
Default Re: VA Clinic in NYC, anyone ever use it

Waiting to hear from my brother in law. Havent forgotten you.
gooseberry is offline  
Closed Thread

Tags
als, clinic


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
US clinic map lgelb General Discussion About ALS/MND 12 12-21-2018 04:31 AM
Clinic Day mpnatx General Discussion About ALS/MND 10 01-08-2016 07:07 PM
U of M Clinic Johny General Discussion About ALS/MND 37 03-05-2015 06:37 PM
ALS clinic for PLS Schmutz General Discussion About PLS 12 03-03-2015 12:10 PM
Houston Baylor Clinic VS Methodist Clinic kaykamas Newly Diagnosed 6 10-21-2014 04:56 AM
To Clinic or Not To Clinic? glupavomomiche People With ALS - "PALS" 17 02-09-2012 09:50 AM
ALS clinic as opposed to MDA clinic llacort People With ALS - "PALS" 4 10-23-2010 12:43 PM
ALS Clinic ronwv Current Caregivers (CALS) 3 12-11-2008 12:22 PM
Cleveland Clinic Als Clinic raggedymary General Discussion About ALS/MND 2 09-11-2008 01:42 PM
New ALS Clinic Jamiet General Discussion About ALS/MND 10 12-04-2007 08:42 PM


All times are GMT -5. The time now is 06:58 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016