Lost my job! Migraine

[slopokahontas]

I had a job as an independent contractor, working 7 days a week. I had a terrible migraine to the point that it exacerbated any ALS symptoms I have. I was stumbling everywhere, like I was drunk and my hand wouldn't work at all! It was so crazy! Anyhow I couldn't work, had to get a cocktail of shots, and finally was functioning the next day.

 

[Nuts]

You lost your job because of one day? Did they think you were drunk? Do they know about the ALS?

 

[Mike in Maine]

That's crazy, for one day. As asked above do they know you have ALS?

Mike

 

[davbo49]

i ant saying that you should stay working. there is a point where you will have to stop even if you don't want to. if they didn't know that you have als. i sure make it known that you did to them. i wouldn't leave out on a bad note.

the way you are saying with your walking. get a walker or something. you don't want to fall.......... and i know, just call me mr fall

 

[slopokahontas]

Yes, they know I have ALS. However when I told them, a few months ago, the said,"Don't know what that is, but sounds like it sucks!" I was surprised by their reaction, I didn't even explain! Normally, I just walk slow with foot drop, I don't usually stumble around so badly. I'm thinking it's a blessing in a way. Waking up everyday at 2 in the morning was wiping me out! I could hardly function the rest of the day! I continued because I'm ineligible for SSDI. I was a CNA, but decided to stay home with my kids the last 5 years, and couldn't go back to being a CNA because my hand is so weak, I didn't want to hurt anyone.
I've always had migraines, but now when I get them it's a scary event!

 

[davbo49]

i made some dvd's up with abc's of als and gave them out. thanks max they didn't ask me any more about it.

 

[Nuts]

It sounds like it's time to stop working, but you might consider making sure they understand what happened.

I can't even imagine you getting up at 2am 7 days a week!

 

[skipper66]

I am sorry that you had to go through all of that. He sounds like you aren't going to have to stop at least doing that type of work. I would be damn sure that they know what you have and what caused it.
You absolutely can't risk having a serious fall. My dad had some of the worst falls imagineable when things would totally buckle and he'd fall down. He fell down a whole entire flight of stairs on two different occasions before we even knew he had ALS. Fell flat on his face in a church parking lot. Fell while out walking and couldn't get back up on his own. You need a cane at least and possible a walker. Eventually, you will be needing someone to walk directly behind you at all times holding onto a gait belt. You can't risk getting a broken bone or concussion.

 

[Janie H]

Sorry that you had to go through this, prayers.

Janie