Isaiah535
Member
- Joined
- Oct 7, 2013
- Messages
- 11
- Reason
- Loved one DX
- Diagnosis
- 01/2013
- Country
- US
- State
- Ok
- City
- Tulsa
My husband was diagnosed with bulbar ALS 2 years ago. He has a PEG tube and has lost ability to walk in his own, use his hands and arms and speak clearly. Breathing has been ok. He uses his non invasive ventilator at night. The past week he has been complaining about the settings I. His vent. He says he feels he needs it to help him breath out more. We tried the automatic setting and he didn't like it. The past few days has communicated that his throat feels like it's closing up. He couldn't sleep last night and kept coughing on extra saliva which he has been having to spit in a cup the past few weeks because it's been too much and too thick to swallow. Anyways my question is when did you know it was time to get the Tracheotomy? What signs do we look for. He has decided he does want to use it when the time comes. But how do we I I when that is? Thanks for any helpful information you all can offer.