starente15
Senior member
- Joined
- Oct 27, 2014
- Messages
- 809
- Reason
- Lost a loved one
- Diagnosis
- 10/2017
- Country
- US
- State
- NJ
- City
- Northern
A visiting nurse checks in on my dad from time to time. The last few times, they've been concerned about his breathing, O2, etc. It causes panic for everyone each time. Today they said he needed to go to the ER immediately to have blood gases done because his respiration was low. I know these nurses don't specialize in ALS so I wonder if they realize that lowered respiration becomes the new normal. To control the panic, I reached out to the doctor who said unless he doesn't feel well and is complaining about, she doesn't want him in and out of hospitals and ERs. He has and is using his bipap which should take care of the CO2 and prior to this episode he was out running errands.
All the different opinions stress me out. I keep trying to have things funnel through one source but it doesn't always happen and then chaos ensues.
All the different opinions stress me out. I keep trying to have things funnel through one source but it doesn't always happen and then chaos ensues.