nebrhahe53
Very helpful member
- Joined
- Jun 13, 2014
- Messages
- 1,017
- Reason
- PALS
- Diagnosis
- 06/2014
- Country
- US
- State
- Tx
- City
- Austin
Spent the last 4 days in the hospital.
Had mentioned my wbc was over 20000. Had CT scan of abdomen which showed what they thought to be diverticulitis with abcess.
Next day they had an inteventional radiologist come in to examine me and drain it. After a minute he pulled me out, told me there was nothing he could do for me and that I had a hole in my intestine, which would need to be resectioned and have a cholostomy bag.
Within 2 minutes he was gone. Even the nurses and doctors at the hospital were agahst at the was he treated me.
GI doctors then looked at me and said no, I had no hole.
Meanwhile I was on IV antibiotics for 4 days, and my WBC went steadily down from 21000 to 16000 to 8800, so I obviously has some infection, probably outside the gi tract.
Meanwhile no one knows what really happened.
At the height of this I could not pee because of the infection pressure on my bladder. I can do that now, but my BM's have never returned to normal. Lots of gas, and many small pieces and some flakes floating. Sorry if TMI.
Through all of this I could not eat and have lost 3 pounds.
Weve been to the best drs and no one can tell me what I have, whether it will come back once the antibiotics stop, or even if its still there.
They say the only way is to open me up and take a look-I know I dont have the strength for that.
Camt even begin to tell you how down I am now.The pressure on my wife and daughter is immense too. Also I change insurance and the ALS clinic I have been goint to is not on the plan, everything is falling apart. I cant even have a normal case of ALS.
Had mentioned my wbc was over 20000. Had CT scan of abdomen which showed what they thought to be diverticulitis with abcess.
Next day they had an inteventional radiologist come in to examine me and drain it. After a minute he pulled me out, told me there was nothing he could do for me and that I had a hole in my intestine, which would need to be resectioned and have a cholostomy bag.
Within 2 minutes he was gone. Even the nurses and doctors at the hospital were agahst at the was he treated me.
GI doctors then looked at me and said no, I had no hole.
Meanwhile I was on IV antibiotics for 4 days, and my WBC went steadily down from 21000 to 16000 to 8800, so I obviously has some infection, probably outside the gi tract.
Meanwhile no one knows what really happened.
At the height of this I could not pee because of the infection pressure on my bladder. I can do that now, but my BM's have never returned to normal. Lots of gas, and many small pieces and some flakes floating. Sorry if TMI.
Through all of this I could not eat and have lost 3 pounds.
Weve been to the best drs and no one can tell me what I have, whether it will come back once the antibiotics stop, or even if its still there.
They say the only way is to open me up and take a look-I know I dont have the strength for that.
Camt even begin to tell you how down I am now.The pressure on my wife and daughter is immense too. Also I change insurance and the ALS clinic I have been goint to is not on the plan, everything is falling apart. I cant even have a normal case of ALS.
