nebrhahe53
Very helpful member
- Joined
- Jun 13, 2014
- Messages
- 1,017
- Reason
- PALS
- Diagnosis
- 06/2014
- Country
- US
- State
- Tx
- City
- Austin
I went in on Monday to have my PEG tube replaced with a button. As soon as I got out, I felt a great deal of pain.
When we opened the button blood gushed out.
Over the next 3 days things just got worse.
It turned out that the hospital did not stock buttons with long enough tubes for adults and the doctor did not measure me to find out how long a tube was needed.
Long story short, after stomach contents started to seep out from the skin opening and any injection in the button resulted in intense pain, I had to get checked into the hospital on Sat night and have a tube put back in. the doctor couldnt do in, so they had an interventional radiologist do it. it took an hour and I was told in another day the hole would have closed off completely.
Do NOT let a doctor put in a button unless he has measured you to see exactly how long a tube you will need and has checked that the hospital has these in stock, neither of which were done in my case.
Now I have to wait and see if I will develop an infection from stomach contents going into my body. Not to mention the exhaustion of 6 days of solid pain. And Ill get a 5K bill for all that!
When we opened the button blood gushed out.
Over the next 3 days things just got worse.
It turned out that the hospital did not stock buttons with long enough tubes for adults and the doctor did not measure me to find out how long a tube was needed.
Long story short, after stomach contents started to seep out from the skin opening and any injection in the button resulted in intense pain, I had to get checked into the hospital on Sat night and have a tube put back in. the doctor couldnt do in, so they had an interventional radiologist do it. it took an hour and I was told in another day the hole would have closed off completely.
Do NOT let a doctor put in a button unless he has measured you to see exactly how long a tube you will need and has checked that the hospital has these in stock, neither of which were done in my case.
Now I have to wait and see if I will develop an infection from stomach contents going into my body. Not to mention the exhaustion of 6 days of solid pain. And Ill get a 5K bill for all that!