rogeriopaguilar
Active member
- Joined
- Aug 5, 2014
- Messages
- 58
- Reason
- Other
- Diagnosis
- 10/2015
- Country
- BR
- State
- São Paulo
- City
- Guarulhos
I know it is hard to see people suffering but since the beginning of my symptoms I saw that the majority of people just vanished. People I thought were my friends just don't talk anymore even to say "Hello" when I'm on-line. I don't understand this. Today I'm fully functional. I'm loosing my abilities in a daily basis. I don't know if it is ALS but is something neuromuscular. I know that when the time comes people will help me but wouldn't be better to be with me while I am somehow "normal"? Why wait to see what happens and avoid me in the most difficult time of my life? I simply don't understand. Even some relatives acts like this and this just makes me suffer more. It appears that people prefer to stay away of home as much as they can just not to see my decline happening. Sometimes this hurts more than the symptoms themselves.
I'm sorry to post this here. I think I'm just thinking loud here...
I'm sorry to post this here. I think I'm just thinking loud here...