I'm going to join your train soon. I'm trying to coordinate the peg with installation of a DPS. Unfortunately the hospital of my clinic, UCSF, does not do DPS so my doctors gave me referrals to a GI and thoracic surgeon connected to the clinic across town. Appears the surgeon requires an eval at the across town clinic and the GI doctor after 5 days hasn't returned my call. The across town clinic is one of those that schedule 3 months out. And I haven't even faced insurance denials yet. It took me over two months to get my bipap due to coding errors, I'm told.
I expect I'm in for a big run around. If it gets too stressful I may just go to my local GI doctor for the JPEG and forget the DPS. I've heard a lot of good reports about the DPS from patients, mainly through the internet but my respiratory therapist doesn't think the system works that well for ALS. Her patients who have gotten the DPS she says don't turn it on often.
Anyway, have you two thought about the DPS? Are you using your local GI guy for the tube or someone your clinic referred you to? I don't think my GI guy has any ALS patients but his wife is a neurologist. That's worth something. Alex