Things we took for granted before ALS. ..

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tinyandme

Distinguished member
Joined
Dec 17, 2013
Messages
220
Reason
Lost a loved one
Diagnosis
10/2013
Country
Ca
State
On
City
Barrie
Scratching an itch
Feeding yourself
Going to the washroom when and where we want
Travelling unencumbered
Holding hands
Hugs
Kisses..
 
typing w/ more than 1 finger
pulling up my pants
EATING lamb, steak, hamburgers, celery w/peanut butter, pancakes, bacon, and eggs, ...
bathing myself although I am getting used to Sandy doing the scrub a dub in the pool
walking the dogs (w/o the pwc)

hmmm I better let someone else have a chance, as I feel I could continue ad infinitum
 
spooning in bed
 
Aww Ya..I miss spooning! Not looking forward to winter in Canada without my cuddling
 
Sleeping
Going to work
Enjoying my hobby
Reading a book, (can't hold one up now)
Being able to lay flat
 
Retirement
Laughter
Seeing your kids grow up
Physical and emotional intimacy
Being partners in your marriage
 
talking and laughing for hours on end ...
 
My husband would say breathing,taking a walk, and having a steak
 
Singing.....i miss hearing my husband sing
 
whistling - that was one of the first things Chris lost that alerted him something was really going on
 
Ahhh Tillie, it was the lack of voice control to be able to sing that made Steve admit this was serious. He loves to sing and had such a nice voice...
 
Saturday "date nights", sitting on the porch drinking margaritas and laughing. I REALY miss the laughter.

Debbie
 
Riding my bike
Hiking
Playing tennis
Getting dressed
 
Yes, but we can still:

Watch the sun rise
Look at the stars
Feel a cool breeze
Watch movies
Go on a cruise
Go to shows
Glory in success
Marvel at wonders
Wonder at marvels
Design structures
Honor the deserving
Give blessings
Inspire others
Exalt in others' accomplishments
Have our vote counted
Sway the vote of others
Hold public office
Play pranks
Make people smile
See birds in our yard
Shop in fun stores
Take part in fundraisers
Pretend
Dream
Imagine
Pray
Feel adored
Spend time with our friends
Make new friends
Enjoy the park
Feel kisses on the back of our neck
Watch children play
Get licked by a puppy
Feel a kitten purr
Do things on the computer
Listen to music
Read our tablet books
Express our opinions
Make our own decisions
Smell the rain
Walk down memory lane
Stick it to the man
Feel the warm sun
Stare at the ocean
Sit in the garden
Teach our children
Let people know how much we love them
Buy stuff
Wear clothes just out of the dryer
Greet trick-or-treaters
Join a protest
People watch
Keep a secret
Solve problems
Play fun games
Make discoveries
Wear stylish clothes and jewelry
Have stylish hair
Watch sporting events
Go to museums
Philosophize
Attend festivals
Count our blessings
Laugh
 
talking and laughing for hours on end ...

Tillie

Tillie ....who does that?

Talking is my most missed dynamic.....I am so sick of not being able to call people, or verbally exchange. I don't think I will ever get used to this, as my voice just gets weaker as time goes on.
 
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