BlueEyesOhio7
Active member
- Joined
- Jun 8, 2014
- Messages
- 83
- Reason
- PALS
- Diagnosis
- 06/2014
- Country
- US
- State
- Ohio
- City
- XXXXXXXXXXX
I have been on Rulizole for about 10 days. My sense of taste has been affected. Things don't taste like they used to. I have other mild side effects like slight nausea and headache which I am sure will disappear as the days go on. I am wondering if the taste being affected is a side effect and will go away or if that is a permanent fixture of the drug?
I am wondering, and my hubby and I have discussed the benefits of continuing to use it. I am thinking there is no way of knowing if it is working.
I am putting this out there just for the sake of discussion and to help with my decision process. I am hoping the discussion will help others as well.
Today is 3 weeks since diagnosis. What a ride! This is a VERY confusing process! My priority is working through the process with a good attitude and being courageous. Yesterday I was NOT courageous! I felt like a quivering mass of jello!
Lynne
I am wondering, and my hubby and I have discussed the benefits of continuing to use it. I am thinking there is no way of knowing if it is working.
I am putting this out there just for the sake of discussion and to help with my decision process. I am hoping the discussion will help others as well.
Today is 3 weeks since diagnosis. What a ride! This is a VERY confusing process! My priority is working through the process with a good attitude and being courageous. Yesterday I was NOT courageous! I felt like a quivering mass of jello!
Lynne