Tony292
Active member
- Joined
- Nov 13, 2013
- Messages
- 58
- Reason
- Learn about ALS
- Country
- US
- State
- ID
- City
- Boise
I have had a lot of Mondays that I have dreaded, mostly due to some work deadline or mind numbing meeting I knew I would have to attend on a Monday. This coming Monday is different, I have been to 7, yes seven neurologists in 24 months, 5 of which told me nothing, one of which told me off the record that I definitely had ALS and would be in a wheelchair in two years, but on the record would only say I had MND and "while the diagnosis is not established, patient appears to be presenting and early case of ALS, but will continue to look in the differential, and one Neuro that thinks I have PLS.
So this Monday is epic, I go to the mayo clinic, they shouldn't be confused, these are the best neuros in the world or so it seems. Yet I am a bit apprehensive due to all that I have been through and the failure at each step to gain a diagnosis. I can deal much better with adversity than ambiguity. I am afraid that on Monday, mayo docs will examine me, scratch their heads, run me through a couple more tests, and tell me to come back in six months. If this happens, I will probably slap some random person and then flop down on the floor and have a fit... Well maybe not, but that is exactly what I will want to do. I can guarantee that nobody within a five state region of Rochester, MN will be more eager for me to get a diagnosis (no matter what that diagnosis may be) than this guy right here.
I'm so tired of being sick and tired, and of doctors not being able to tell me anything other then I have MND... Sorry for the rant! Sometimes we we all just need to vent a little... I'll be very excited/nervous on Monday...
So this Monday is epic, I go to the mayo clinic, they shouldn't be confused, these are the best neuros in the world or so it seems. Yet I am a bit apprehensive due to all that I have been through and the failure at each step to gain a diagnosis. I can deal much better with adversity than ambiguity. I am afraid that on Monday, mayo docs will examine me, scratch their heads, run me through a couple more tests, and tell me to come back in six months. If this happens, I will probably slap some random person and then flop down on the floor and have a fit... Well maybe not, but that is exactly what I will want to do. I can guarantee that nobody within a five state region of Rochester, MN will be more eager for me to get a diagnosis (no matter what that diagnosis may be) than this guy right here.
I'm so tired of being sick and tired, and of doctors not being able to tell me anything other then I have MND... Sorry for the rant! Sometimes we we all just need to vent a little... I'll be very excited/nervous on Monday...