Repamun

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ardalon

Active member
Joined
Jan 5, 2014
Messages
61
Reason
PALS
Diagnosis
07/2013
Country
DE
State
Germany
City
Jossgrund
Hi there,
anyone experiences with REPAMUN plus?
 
I am struggling with the translation here is this sirolimus? The immunosuppressive? If so, the researchers in the US are looking hard at that issue as a possible explanation for Ted Harada and there is a current trial giving the same regimen is used with neuralstem without the transplant part

Or is this something else? If someone could help me out with a brief explanation since I did not get very far with the links Max thoughtfully added

Thanks guys!
 
>Or is this something else? If someone could help me out with a brief explanation since I did not get very far with the links Max thoughtfully added

the best ones are in German but you can use Google Translate if you need. :)

I've asked my daughter, Jenny, who is in Northern Germany to research ...
 

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fyi:

[2:27:20 PM] Max L. Eidswick: jenny, please research
[2:39:48 PM] Jen Eidswick: okay
[2:40:04 PM] Max L. Eidswick: thanks
[2:40:15 PM] Jen Eidswick: the first one hasn't been approved yet
[2:40:24 PM] Max L. Eidswick: I will post what you learn
[2:40:32 PM] Jen Eidswick: hsp70 is the main research topic of one of our working groups
[2:40:38 PM] Jen Eidswick: i can go ask around
[2:40:43 PM] Max L. Eidswick: :)
[2:41:18 PM] Jen Eidswick: i know that the misfolding of them can lead to several neurodegenerative diseases (i.e. ms, parkinsons, alzheimers)\
[2:41:35 PM] Max L. Eidswick: great :(
[2:47:13 PM] Jen Eidswick: where are you finding there?
[2:47:23 PM] Jen Eidswick: the third link looks shady
[2:47:48 PM] Max L. Eidswick: try https://www.google.com/webhp?sourceid=chrome-instant&ion=1&espv=2&ie=UTF-8#q=REPAMUN
[2:51:16 PM] Jen Eidswick: looks fake
[2:51:38 PM] Max L. Eidswick: shall I report that?
[2:51:59 PM] Jen Eidswick: this is where you land when you put in the company's webaddress
[2:52:03 PM] Jen Eidswick: biomun.de
[2:52:42 PM] Jen Eidswick: let me look around before you report that, but maybe say that people should be careful
[2:52:49 PM] Jen Eidswick: are you webcam ready?
[2:52:57 PM] Max L. Eidswick: itt never came up for me :(
[2:53:21 PM] Max L. Eidswick: I'll call mommy
[2:53:24 PM] Jen Eidswick: it tells you that you can by the domain and provides you a link to penis pills
 
more info, Jenny just spoke with the neuro doing this work ...

[3:28:51 PM] Jen Eidswick: wow
[3:29:25 PM] Jen Eidswick: i'll have a look around our journal search engine this weekend for supporting articles

i take back what i said earlier about it looking shady
[3:30:05 PM] Jen Eidswick: it's use is apparenlty approved already

from Jenny: it is in German but understandable ...

[3:27:27 PM] Sandy Eidswick: https://www.ndr.de/fernsehen/sendungen/nordmagazin/Hoffnung-fuer-ALS-Kranke,nordmagazin23830.html
 
more info:
Jen Eidswick

Hi,
Jen Eidswick

The main ALS clinic in Germany released their two cents on repamun. Unfortunately, it looks like the news program NDR got a bit ahead of themselves. I'm sorry to say that the head of the clinic says that it isn't credible. he attributes any improvements observed in this particular case are most likely a result of the placebo effect.
hi off to work, will im from there ok?
Jen Eidswick

i went to one of our professors who deals with heat shock proteins yesterday. I have compiled some stuff that i want to take by this week for her to look at, but she too was very skeptical.
Jen Eidswick

I'm sorry that this isn't turning out to be as promising as it first sounded. The bright side is that the report has drawn more attention to ALS. I've been checking out other studies published on HSPs in the context of ALS. A lot of it does look very promising in a well-investigated, legitimate way.
Jen Eidswick

https://www.facebook.com/photo.php?...415119.1073741825.240885920118&type=1&theater
Jen Eidswick

Here is a link to Berlin Charite's Repamun press release.
Jen Eidswick

https://www.facebook.com/photo.php?...415119.1073741825.240885920118&type=1&theater
Chat Conversation End
 
You're right Max!
One cannot be careful enough even if it's broadcasted on a respectable channel on television.
 
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