dalvin
Senior member
- Joined
- Sep 12, 2013
- Messages
- 956
- Reason
- PALS
- Country
- US
- State
- va
- City
- richmond
Just got back from a visit to the ALS clinic. More bad news and it's getting to me a little. Neck muscles are so far gone that they've prescribed a neck brace to hold my head up. One of those strange looking contraptions with lots of metal involved. Then they did the respiratory fvc test down to just 25 percent. Had been 60 in Dec. was low in March but thought it was because of the respiratory infection in February. Just been hard this week, today's stuff and realizing just how bad my arms and legs have atrophied. Can't say it enough, ALS sucks