Your case should be fast-tracked due to your ALS diagnosis under the Compassionate Allowances program. This means that your case should be decided within a couple of weeks. However, if you are applying for SSDI benefits, you can't collect benefits until five months after the onset of your disability. With SSI, there is no waiting period.
If you’re applying for Social Security disability benefits based on your ALS, the SSA will review your medical records, and will want to see a specific ALS diagnosis. They will also look for findings that support this diagnosis, including:
a history of your symptoms
neurological findings that are consistent with an ALS diagnosis
the results of electrophysical and neuroimaging tests that rule out other conditions, and
electromyography or nerve conduction studies (these are helpful if they support your diagnosis, but are not a requirement).
To apply for disability benefits, call the Social Security Administration’s at (800) 772-1213. Depending on your preference, they will make an appointment for you to complete an application either via telephone or at your local SSA office. You can also apply for SSDI benefits online at
The United States Social Security Administration.
If you are approved for SSDI benefits based on ALS, your eligibility for Medicare should start right away (rather than be subject to a two-year waiting period).