GilWest
Distinguished member
- Joined
- Mar 1, 2014
- Messages
- 359
- Reason
- Lost a loved one
- Diagnosis
- 01/2014
- Country
- US
- State
- WV
- City
- Southern
Mom is getting 1500 calories a day. She has lost over 20 pounds which was the reason for the tube in the first place. The docs tell me she will maintain at 1500 cals a day. I say that she needs more. I think I convinced them to go to 2,000. Did you or your PALS have to wait before upping calories? On a good note, I did get in with a neuro at the hospital that has done more and answered more of our questions than the one at the ALS clinic ever did. He basically mapped out a plan from now until the end complete with meds to try and off-label meds we can use.