Gilenya versus Rasagiline

[mrd1956]

Greetings:

I need your opinions and input if possible. I have the opportunity to participate in a phase 2 clinical trial in either Gilenya or Rasagiline, and I don't know which one to give the edge to. My neurologist has given the thumbs-up to both. Any suggestions? Thanks very much.

 

[MaxEidswick]

I am in the Fingolimod trial, but have not started yet as I have to wait another 25 days w/o the ProCardia in my system.

>Rasagiline

this one is a bit scary. No one seems to know what it does, if it works, and I have not seen ALS references yet ...

 

[pearshoot]

I did rasagiline one year trial. don't think final report has been filed. doing azilect off label now....been over two years since I started rasagiline....DXed 2/2010....slow progression....don't know if rasagililine or azilect is helping or not...I will stay with it until I learn more about it or start having side effects....

 

[MaxEidswick]

>been over two years since I started rasagiline....diagnoseded 2/2010....slow progression....don't know if rasagililine or azilect is helping or not...I will stay with it until I learn more about it or start having side effects...

How can I get it? my progression is not slow ...

 

[pearshoot]

talk to your clinic neuro....my neuro is where I did the rasagiline trial...he might contact dr Richard boram at Kansas uni als med cntr

 

[MaxEidswick]

will do, thanks!

 

[Tx Daddy's Girl]

I'm on Gilenya for my MS and have had great results.

 

[pearshoot]

big problem with drug trials...rarely will a report be published...PALS have no idea what the drug did or didn't do....we need that information to help make decisions...

 

[MaxEidswick]

>I'm on Gilenya for my MS and have had great results.
>big problem with drug trials...rarely will a report be published...P

the good news is that Gilenye/Fingolimod is FDA approved for r/r ms, with 70k users now. I wish we could just get it.

 

[Tx Daddy's Girl]

>I'm on Gilenya for my MS and have had great results.
>big problem with drug trials...rarely will a report be published...P

the good news is that Gilenye/Fingolimod is FDA approved for r/r ms, with 70k users now. I wish we could just get it.

At the moment, you and me both. My insurance refused to pay for it this year and it's $4509/mo. I make too much money to get any assistance so they told me to quit my job to get meds. I'm lucky enough that I can do cartwheels around my house and you would never know I had MS and I'm the breadwinner of my family so I can either suck the government tit or be a productive member of society. It baffles me.

 

[MaxEidswick]

>My insurance refused to pay for it this year and it's $4509/mo.

Wow! :-(

>I'm lucky enough that I can do cartwheels around my house and you would never know I had MS

That's great but be careful