Old 05-21-2007, 09:59 AM #1 (permalink)
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Default fresh news from Poland

Hi,

there is a very interesting info on polish ASL forum.One member from that forum is in contact with a man from germany, who thinks he found a method to stop muscle waisting in ALS.He was searching for this method for a couple of years.On polish forum we will have every details 25th of May.It sounds very interesting.I ll translate and send it after 25th to this forum.
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Old 05-21-2007, 10:22 AM #2 (permalink)
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do you have the link?
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Old 05-21-2007, 10:34 AM #3 (permalink)
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Anna, it is so good to hear from you. I have been wondering how you are. Did you positively have Lyme and did treatment help you? That's something I have recently been tested, again, for. Let me know and keep in touch! Leslie
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Old 05-21-2007, 08:47 PM #4 (permalink)
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Hi Anna- good to hear from you again. How are you feeling? Thank you for offering the info from Germany. I am sure if the research proves hopeful every ALS clinic in the world will be promoting the results. This would truly be world news! Cindy
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Old 05-23-2007, 09:58 AM #5 (permalink)
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Hi girls,

Im still taking abx and Im really fed up with them.Im still twitching but I cant see any progress.I dont know if abx will help me I have to do another emg to know is it worse or not.Right now Im feeling fine.I hope that method from Germany will give a hope-as far as I know that method is useful only for early stages.We will see.
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Old 05-23-2007, 10:00 AM #6 (permalink)
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Oh Leslie you should do 2 tests to be sure.Ive done PCR first and than Elisa test.I have 2 tests positive.
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Old 05-28-2007, 04:06 AM #7 (permalink)
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By the way there is a big part in polish language, but it is to hard for me to translate.I hope you know somebody from Poland who can translate it.
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Old 05-28-2007, 10:37 AM #8 (permalink)
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Default Hi Anna,

Hi Anna, I have been following your post. My Mother is fluent in Polish. She would be able to translate but, she lives in Kingston, N.Y. 3 hours from me. It would take a few days to have her translate. Both my parents are Polish ,Grandparents came from Poland. Where do you live? I have a friend who lives in Podkarpackie. Looking foward to your news. I'll try to help. My best to you, Beebe
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