Old 01-21-2005, 04:47 PM #1 (permalink)
Angela's Avatar
New Member (Say Hi)
 
Join Date: 2004
Posts: 2
Angela is an unknown quantity at this point
Angela Angela is offline
New Member (Say Hi)
Angela's Avatar
Join Date: 2004
Posts: 2
Angela is an unknown quantity at this point
Default Newcomer.........

Hi! i have come to tHis website for the first time. my sister's husband, who i love like a brother, was diagnosed with als last month. their world is spinning out of control and i don't know what to do to help. i would love some suggestions from someone who's been there............
Angela is offline  
Old 01-21-2005, 05:40 PM #2 (permalink)
PALS Mike's Avatar
Member
 
Join Date: 2004
Posts: 146
PALS Mike is an unknown quantity at this point
PALS Mike PALS Mike is offline
Member
PALS Mike's Avatar
Join Date: 2004
Posts: 146
PALS Mike is an unknown quantity at this point
Default

First thing to do...just be there for them.

be there to tell him/them you "love him/them"...
be there to hug them...
be a shoulder to cry on...
help him to never give up!

you've made the biggest leap (to help them) by seeking the advice/help of people who are walking the same road.

miracles can and do happen everyday...
so never give up hope.
PALS Mike is offline  
Old 01-21-2005, 11:32 PM #3 (permalink)
Carol Deboer's Avatar
Member
 
Join Date: 2003
Posts: 345
Carol Deboer is an unknown quantity at this point
Carol Deboer Carol Deboer is offline
Member
Carol Deboer's Avatar
Join Date: 2003
Posts: 345
Carol Deboer is an unknown quantity at this point
Default

Hi angela,

welcome to our Home. sorry to Hear about your brotHer in law. tHere is all kinds of Help Here. as mike says,love and support from family and friends is good medicine. if you Have some time, read some of tHe former posts from all of us from weeks and montHs ago. tHere is some good reading and some good laugHs. yes, you will find lots of Humour Here. it is a neccesity wHen you are dealing witH adversity to tHis degree. my Husband Henry, Has Had als for almost 7 years now. we Have Had some difficult times, but, we Have Had some fabulous times too. its all in your approacH to life. your Heart will lead you in tHe direction you need to go to Help your family at tHis difficult time. tHe best of luck to you all, and we will add you to our prayer list. stay strong, and if you need anytHing at all feel free to ask for Help. we will all Help you, tHe best we can. take care....

carol xo
Carol Deboer is offline  
Old 01-21-2005, 11:50 PM #4 (permalink)
karenmorrison's Avatar
New Member
 
Join Date: 2004
Posts: 16
karenmorrison is an unknown quantity at this point
karenmorrison karenmorrison is offline
New Member
karenmorrison's Avatar
Join Date: 2004
Posts: 16
karenmorrison is an unknown quantity at this point
Default Hi

Richard has had als for 2 1/2 years...we take one day at a time...we laugh and he seems to be much better then when he was alone...but laughter, hope and love is the key....so give all you can with your heart and soul....we make light at times of the situation and that sometimes help...so stay positive...your in our prayers....Richard and karen
karenmorrison is offline  
Old 01-22-2005, 12:12 PM #5 (permalink)
TBear's Avatar
Member
 
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Interest: My wife lost her battle with ALS in 2001
Posts: 433
TBear is an unknown quantity at this point
TBear TBear is offline
Member
TBear's Avatar
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Interest: My wife lost her battle with ALS in 2001
Posts: 433
TBear is an unknown quantity at this point
Default

Hi angela:

sorry you're Here.. but welcome to our little corner of wackiness. you can Help out you sister and Her Husband in many ways and if you go to tHe als website you''ll see tHat tHere are publications online tHat will give you some suggestions.

tHe biggest step you've already made... and tHat is tHat you've gotten involved! be Helpful to your sister and Hopeful to your brotHer in law... after tHat come Here often and ask questions... oH and yes you'll need a substantial sense of Humour.

t.
TBear is offline  
Old 01-23-2005, 09:19 AM #6 (permalink)
Angela's Avatar
New Member (Say Hi)
 
Join Date: 2004
Posts: 2
Angela is an unknown quantity at this point
Angela Angela is offline
New Member (Say Hi)
Angela's Avatar
Join Date: 2004
Posts: 2
Angela is an unknown quantity at this point
Default

Thanks for your words of encouragement.......it is nice to talk to people who understand als......a lot of people around here don't even know what als is. my brother-in-law's specialist has 40 patients in new brunswick and there is not a support group in their city. i am going to try to direct my sister to this site.....right now she is really pissed at the world and neither one is open to suggestions at the moment. i will follow your advise is just be there. Thanks again, angela
Angela is offline  
Old 01-24-2005, 05:41 PM #7 (permalink)
PALS Mike's Avatar
Member
 
Join Date: 2004
Posts: 146
PALS Mike is an unknown quantity at this point
PALS Mike PALS Mike is offline
Member
PALS Mike's Avatar
Join Date: 2004
Posts: 146
PALS Mike is an unknown quantity at this point
Default

What part of new brunswick are you from?

i'm a military brat, and used to live in the miramichi area...
PALS Mike is offline  
Old 01-25-2005, 03:39 PM #8 (permalink)
mannco74's Avatar
New Member
 
Join Date: 2003
Posts: 80
mannco74 is an unknown quantity at this point
mannco74 mannco74 is offline
New Member
mannco74's Avatar
Join Date: 2003
Posts: 80
mannco74 is an unknown quantity at this point
Default new comer

Hi angela,

i delivered tHiss address to national neurologists convention. it was called "wHat we wanted our neurologist to know. Hope it is useful
Http://www.als.ca/_media/docs/cHrismann.pdf

please disreguard tHe stupid upper case H's and cHrismann is upper case. may be one day i will figure out some benefit to us from new update. site is not disability freindly as i type witH one remaining finger and cut and paste mucH
mannco74 is offline  
Old 01-29-2005, 12:34 AM #9 (permalink)
holly's Avatar
New Member
 
Join Date: 2005
Posts: 19
holly is an unknown quantity at this point
holly holly is offline
New Member
holly's Avatar
Join Date: 2005
Posts: 19
holly is an unknown quantity at this point
Default

Welcome angela

i'm new to the forum too. not so new to living with a spouse with als. i've found (when i do have time to sit down and read the forums) a wealth of information, oodles of empathy and a fabulous sounding board. keep the lines of communication open to them. it's sooo hard to talk about it at first, cause it's like you make it real but talking about it. you just want to make it go away. but there will come a time when they will want to talk, and i know it''s helped me when i know someone is going to be receptive to me just talking it out without trying to "fix" it for me. a night with a couple of rum and cokes and a box of kleenex doesn't hurt either.

holly
holly is offline  
Old 01-29-2005, 10:44 AM #10 (permalink)
TBear's Avatar
Member
 
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Interest: My wife lost her battle with ALS in 2001
Posts: 433
TBear is an unknown quantity at this point
TBear TBear is offline
Member
TBear's Avatar
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Interest: My wife lost her battle with ALS in 2001
Posts: 433
TBear is an unknown quantity at this point
Default

... oh holly, you and les must be one of us. nobody else can finish off an als posting without a booze reference!
TBear is offline  
Old 01-29-2005, 12:46 PM #11 (permalink)
holly's Avatar
New Member
 
Join Date: 2005
Posts: 19
holly is an unknown quantity at this point
holly holly is offline
New Member
holly's Avatar
Join Date: 2005
Posts: 19
holly is an unknown quantity at this point
Default

Tbear

i don't want to mislead you......les can't drink anymore and though i'd like to take up the slack, i worry that if i have more than two i'll not be alert enough to look after les. so i stick to about two, but boy do i make them count.

holly
holly is offline  
Old 01-29-2005, 01:23 PM #12 (permalink)
TBear's Avatar
Member
 
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Interest: My wife lost her battle with ALS in 2001
Posts: 433
TBear is an unknown quantity at this point
TBear TBear is offline
Member
TBear's Avatar
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Interest: My wife lost her battle with ALS in 2001
Posts: 433
TBear is an unknown quantity at this point
Default

Hi Holly:
my wife couldn't drink eitHer... but it never stopped Her from enjoying a glass of wine or two or tHree! sHe probably wore as mucH as sHe drank, but sHe enjoyed it a lot! it's one of tHe last tHings we did togetHer! tHere seems to be an afinity for rum Here tHougH.
t
TBear is offline  
Old 01-29-2005, 08:08 PM #13 (permalink)
PALS Mike's Avatar
Member
 
Join Date: 2004
Posts: 146
PALS Mike is an unknown quantity at this point
PALS Mike PALS Mike is offline
Member
PALS Mike's Avatar
Join Date: 2004
Posts: 146
PALS Mike is an unknown quantity at this point
Default

It's a fine line between 'social drinking' and 'drinking to cope'...

you hafta be careful.
PALS Mike is offline  
Old 01-29-2005, 10:59 PM #14 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
Default

So what'S the worSt it can do? kill you? big deal. i laugh in the face of adverSity. actually it ScareS the hell out of me but you do what you have to do. right guyS?
Al is offline  
Old 01-30-2005, 07:38 PM #15 (permalink)
TBear's Avatar
Member
 
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Interest: My wife lost her battle with ALS in 2001
Posts: 433
TBear is an unknown quantity at this point
TBear TBear is offline
Member
TBear's Avatar
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Interest: My wife lost her battle with ALS in 2001
Posts: 433
TBear is an unknown quantity at this point
Default

... so much is lost over the course of this that it is important to try to enjoy the things that you did before and maintain any semblance of normalcy.
you guys have a tough enough job dealing with the sickness without having to concern yourselves with the protocol and mores of society. especially for you, life is way too short to not enjoy what you can... (even if it involves jumping out of perfectly servicable airplanes at 3000 ft.) so, if it included a glass or two of fine wine with dinner then so be it... whether dinner involved mashed up meat and veggies, or 250 mls of nutrisource through a g-tube!

t.
TBear is offline  
Closed Thread

Tags
als, brother, diagnosed, love, website


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
newcomer primerib16 General Discussion About ALS/MND 21 03-09-2012 10:04 AM
Newcomer with PLS LouLou General Discussion About PLS 5 07-16-2011 03:18 PM
Newcomer Question Le Le General Discussion About ALS/MND 6 12-06-2009 08:00 PM
Another Newcomer thomkat Current Caregivers (CALS) 1 03-16-2007 11:30 AM


All times are GMT -5. The time now is 06:50 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016