Need ALS commenters and tweeters!

[rknt50a]

PhRMA is the large pharma industry association. They have a theme on their website this week of rare diseases.

Please take a look
On 10/17, PhRMA will host a Twitter chat session around the subject of medicines in development for rare diseases. What are the shared priorities and interests of the diverse rare disease community that should be discussed in the Tweetchat? | PhRMA

That page could use some comments pertinent to ALS!

Also...

PhRMA is hosting a tweetchat on Thursday, 10/17 at 4pm EDT
Hashtag is #rarePOV
Follow @SDFatPhRMA as I think that she is leading.

It’s a huge opportunity for us to get ALS in front of some people and try to turn some light bulbs on about how ALS can be a proving ground for new drug development processes. Unfortunately I have a day-job commitment that will prevent me from participating in the tweetchat. I hope that some here or your friends can chime in.

ALSA and MDA don’t seem to be giving it any bounce, so it’s up to us.

Thanks very much.

 

[jellis86]

Thank you for the info...I placed a link on my face book ALS page!

 

[pearshoot]

my question for phama. how much research do they do looking for a cause for ALS versa creating a medicine that works as a bandaide for ALS smpthoms